Sierra Domb Shares 2024 VSI Updates on Visual Snow Syndrome

0:00 — Sierra: Intro
01:48 — Summary of Progress
03:53 — New Webpages
07:17 — Q&As
08:15 — Dr. Puledda / Biomarkers
11:48 — Dr. Schankin & Klein / Neuromodulation, tACS
13:58 — Dr. Wong / MBCT, fMRIs
16:41 — Dr. Owen / MBCT Insights
23:22 — New Medication Study
27:20 — Important Differences
31:39 — Video Support Group
36:07 — VSS ICD Code
39:41 — VSI Studies
43:48 — Sierra: Thank You

Sierra Domb, our Founder, shares the Visual Snow Initiative’s latest updates on Visual Snow Syndrome, including a new medication study, ongoing collaborative global research, insights from experts, supportive and educational resources, advocacy efforts, and more.

Visual Snow Initiative Website:

Donate to the Visual Snow Initiative:

Visual Snow Initiative Social Media:

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[AverageMitch]

Depersonalization is by far the worst symptom in my life. I picture a life I want but I'm trapped in a foggy bubble that I can't break free of. Thank you Sierra Domb for everything you are doing. You really have given me hope for the future.

[mfraser]

Thanks so much, Sierra. Puledda is a VSS rockstar researcher. We need to keep supporting her work.

[mugs]

Thanks for doing so much for other people dealing with this situation. Just knowing theirs an organization out their working to bring awareness to and studying VS brings a lot of relief and comfort to those dealing with the condition. At least it has done for me. Thanks so much for putting such effort in to create this!

[Luukmovies]

VSS is impacting my life greatly for 13 years now. Thank you so much for all your hard work. Would be amazing if we could find a cure, or at least some relief. Thanks ❤

[stokesbradley]

Thanks for all your efforts; still to this day I have just had to learn to live with this stupid & annoying condition. My night vision has got so bad now and its just such a shame however its very nice to come back to this and see other people with the exact same struggle. I remember when it started around the time I was 18 years old and the panic that caused, never getting an answer from health care providers. Now I accept it for what it is but sometimes it really does get me down and I wonder why it never went away. I appriciate your hard work!

[KboisGrarage]

Glad I found this page. Thanks for everything you’ve done and are doing :)

[angeliquetamsinpotgieter]

My VSS started April 2022 and I have MS so having these 2 neurological conditions is a nightmare 🙈 Life is so difficult 😔🎗️👀
Thank you Sierra for this platform and keeping your efforts alive 🙏 I am in South Africa and MS is hardly understood nevermind VSS, I don't even bother mentioning it anymore, nobody in the medical field here knows what the hell I'm talking about, I have yet to meet someone who has insight most just brush me off when I 🎉try to talk about it, it's sad 😢🇿🇦 But me being me I will mention it again if I see someone new which I actually hopefully do next Jan just to see if anything has reached here yet 🙏

[hak]

You are doing important work. We need to keep going with research and awareness of VSS. I have brought this syndrome to the attention of many of my medical colleagues.

[JoseMorales-jdpz]

I believe this organization should have a section in Spanish. Considering the global impact of this disease, providing information in Spanish would help reach millions of Spanish-speaking individuals who may be affected or interested in the research. It would also demonstrate a commitment to inclusivity and global awareness, ensuring that vital information about prevention, treatment, and advancements is accessible to a broader audience.

[mistahmo]

Thank you for all your hard work, Sierra.

[janak]

My son has a VSS. I hope a cure will be found🙏. We are from Europe.

[Azns]

Thank you so much ☺️ You are like an angel for me 🙏 i wish VSI can find cure for this ASAP

[danmarquez]

This is the first time I learned about VSS. Thank you so much for the GREAT education!

Questions: Are there risk factors, such as gut dysbiosis? Has the prevalence recently gone up? If so, where can I find a graph to correlate events with the rise (if applicable?)

In the Interim: I do have recipes of vegan smoothies that might help. Let me know your interest... if I should post in the comments or send an email. One was designed to increase GABA, another was designed to improve sleep, and another designed to reduce stress without adding drowsiness. The smoothies are low oxalate (for those with low stomach acid or kidney stones) and they use natural ingredients (real foods).

[johnholcomn]

65 years old. Wasn't until the last decade that I realized I am not going blind or have a brain tumor. I was scared to death as a kid. I resigned to a dread of future blindness in the cards. The darkness was the worst. Whirling solar storm and ringing ears. The scariest symptom was losing touch with my identity and losing track of where and who I was. Brief spells that lasted 90 seconds to 2 minutes. I still have all the symptoms. In my case I can honesty say the symptoms persist, but depersonalization is much more rare. I wish I had known about VSS when i was much younger. No question not knowing what was wrong with me left me feeling hopeless and I didn't put much effort into preparing for the future. Why bother?, I thought, I will eventually be blind anyway. ❤

[CalmaSiempre]

Buenas tardes, desde España.

Muchas gracias por el video, estoy muy agradecido y saber que von el tiempo podremos curar la nieve visual, me hace muy feliz!
Me llamo Salvador, un beso desde España!

[MarioDuran-ts]

thank you for all the work you have done :} sending love and prayings from Mexico all glory to our lord and saviour Jesus Christ amen :)

[StarHarvestOfficial]

These are so important. Youre such a gem 💎

[dacallp]

Hi there VSI! May I ask where I can find the Visual Imagery Project? Or is that no longer accessible? I can't find any links to it on your website, and I'd appreciate it immensely if you could share it with me!

[mbkayakfishing]

A very common symptom along with visual snow is myodesopsias or floaters...
Can someone explain to me what the relationship is?
Visual snow is something from the central nervous system but floaters are something physical from the vitreous that comes off.

[firehuntbreaking]

So great! Thank you so much, you are my hope!!