Diagnostic Challenges with Interstitial Cystitis and Painful Bladder Syndrome #IC #PBS

Just another reason why Pelvic Floor Physical Therapy should be offered to everyone 🫶

#painfulbladdersyndrome #interstitialcystitis #pelvicpain

[daniellemroz]

If you have interstitial cystitis, like the for real no joke IC it is going to impact every aspect of your life and of your families lives as well. You have to be resilient. I'm not saying you can't fall down and cry once in awhile only that self pity isn't a place anyone with IC can tolerate long since this disease causes such a high degree of suffering on its own. There is not one single thing that helps and you need to modify how you do about everything. The best treatment is prevention and that impacts your quality of life so so much. It's wanting more than anything to go with your family and do all the things they beg you to do and having to say no, you go without me and having to pretend that it doesn't hurt you that's your ok with being left behind its also dealing with the emotional toll of guilt ad shame you feel because your letting them down, it's the emotional toll of having your actions not matching up to who you really wish you could be knowing it's not your fault doesn't matter. Your actions speak for themselves. Everyone gets sick of someone who's always sick. The good news is with more awareness most won't go there entire lives not understanding what's wrong they have a name for it and information is there that can help . Don't push your last drops out, is my advice. That makes pelvic floor worse. Try not to reflex anticipatory pain either.