Blood Cancer Awareness 11 Polycythemia Vera Symptoms Current Solutions Infograph on Pinterest MPN

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11 Polycythemia Vera Symptoms Current Solutions and linked Infograph on Pinterest.
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[jonwhite]

I was diagnosed over three years ago, its life changing. This itching can be over the top terrible, the fatigue on top of the depression is very difficult to deal with. Your video was spot on, keep the faith, PV can be very lonely.

[meganjarvis]

I hear ya my friend, feels like no one understands what we go through. 🥰🥰🥰🥰🥰🥰
Hang in there.

[thegreatpurplefishlord]

Hi there, hope you're doing as ok as possible. I just got diagnosed yesterday and found this more helpful than my bloody haematologist!

[garyglick]

I feel your pain just started going through this recently

[hettihoward]

Thank you. You are absolutely doing your part! I am so grateful for all your sharing as it helps me to know Im not crazy or imagining things. You are beautiful and courageous! Blessings!

[fionaedmonds]

Itching can be relieved within seconds using a brush such as a nail brush as this will confuse the nerve endings! I use it for mozzie bites as well!

[lorimori]

Thank you so much for sharing. It has helped me alot.

[heinzketchup]

Thank you so much for sharing this information 🙏💟

[ah]

I have PV and found this very useful and informative good too see we are not alone with these symptoms. Thanks for posting.

[zerkojunk]

Thanks for your videos, it's going to help me to help others understand what I'm going through

[johnbelile]

As a person with PV ... Let Me Say ... the Video is very Well Done ! ! !

[rosemarieducharme]

Thanks, Many days I think my family feels like I'm going crazy, I can sleep12 hr a day and don't really want to but I HAVE to😥

[Prphcy-kz]

My doctor just mentioned this to me. I have 10 of the 11 symptoms you mentioned. My cbc and symptoms has my dr suspicious. I am scheduled for another blood test and imaging before my dr decides what to do next.

[Edward_USMC]

36 yr old USMC combat veteran, pv diagnosis about 3 months ago... its crazy this manifested literally overnight, it seems... the VA just admitted service connection since i was exposed to what's widely considered the most toxic burn bit since the wars in iraq and afghanistan started. Anyway, i see my oncologist for a phlebotomy treatment tmrw, but my FEET have just out of control lately.. so painful....most days i feel somewhat decent but the brain fog and overall neurological effects are definitely real. Same thing with the eye situation and CONSTANT red flushing..i will never ever lack sympathy for you gals going thru menopause lol... i am a very fit, young male...and outta nowhere have these random flare ups where my blood feels like its boiling and its embarassing bc i'll start pouring sweat. .. cheers, everyone!


oh, question, ma'am.. where you getting these bruises?? i was terrified recently i had leukemia rash as my torso got these welty bruises everywhere...but i just had a bone marrow biopsy to ensure i dont have AML, which i dont....but i'm about to ask my dr about these random bruises.

[mayaapperley]

Great and honest video. Really helpful
Thank you

[faithnaidoo]

Good day to you mam.How are you feeling today??.Is this blood cancer??.what causes the itching???.I was diagnosed with PV last year.Why do the bones hurt so badly??May life treat you kinder.God bless.❤

thanks, your videos always keep me going and stay positive. Its been one year now since I have been diagnose with PV and just started to learn how to live with it. right now phlebotomy and aspirin are the only things I am using. Q- are you on any medication for the long run ?

[johnandelias]

I’m wondering did you break out with hives and things along with the itch, I have been getting hives on a daily,

[johnandelias]

Also what about the jak2 mutation test are those always positive to have PV, my doctor is kinda lost I go back in next week hopefully with some answers, legs are always sore and they do drive me nuts trying to sleep

[johncollins]

When I get lightheaded and dizzy I stop, put head down, close my, eyes and hold my temples. I have really bad restless leg syndrome too.