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NACFC | Plenary 3: Evolving With the Times: Staying Agile With a Diverse & Aging CF Population
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During plenary 3 of our North American Cystic Fibrosis Conference, watch as Elizabeth Tullis, MD, FRCPC, walks us through the shifts in what CF care teams are doing now and what we need to invest in to support the continued evolution to improve care coordination and disease management.
0:00:00 | Evolving with the Times: Staying Agile With a Diverse & Aging CF Population
0:00:25 | Cynthia George welcomes audience
0:02:00 | Presentation of Mary M. Kontos Care Champion Award to Kate Barnico and Sue Gray
0:06:25 | Presentation of Carolyn and Richard C. Mattingly Leadership in Mental Health Care Award to Shaina Blair, LCSW
0:09:45 | Dr. Bruce Marshall introduces Plenary 3 speaker, Dr. Elizabeth Tullis
0:13:43 | Dr. Elizabeth Tullis begins Plenary 3 presentation
0:16:06 | A time of change
0:16:15 | The face of CF then
0:16:26 | The face of CF now
0:17:58 | Population projection: change in the CF population
0:20:31 | Lung function projection for the future
0:23:30 | Change in complications
0:26:05 | Mental health implications
0:27:27 | How to recognize new complications
0:29:10 | Change in significant events
0:31:47 | Change in how people with CF view themselves
0:33:44 | A time of uncertainty
0:34:22 | Video of Becky Skinner: an adult living with CF
0:37:40 | New uncertainty for people with CF
0:38:40 | New uncertainty for healthcare professionals
0:39:39 | Meeting the challenge
0:40:46 | How does the CF community prepare for the future?
0:41:39 | What can people with CF do?
0:43:45 | What can the CF team do: Reflect
0:45:04 | What can the CF team do: Plan
0:46:49 | What can the CF team do: Readjust
0:48:08 | What can the CF team do: Adapt
0:49:39 | What can care center directors do: Inform
0:53:44 | National CF organizations
0:58:40 | Improving detection and diagnosis of microorganisms
0:59:58 | Mucolytic therapy in the era of CFTR modulators
1:01:16 | International collaboration
1:02:39 | Closing remarks
Originally recorded November 5, 2022.
0:00:00 | Evolving with the Times: Staying Agile With a Diverse & Aging CF Population
0:00:25 | Cynthia George welcomes audience
0:02:00 | Presentation of Mary M. Kontos Care Champion Award to Kate Barnico and Sue Gray
0:06:25 | Presentation of Carolyn and Richard C. Mattingly Leadership in Mental Health Care Award to Shaina Blair, LCSW
0:09:45 | Dr. Bruce Marshall introduces Plenary 3 speaker, Dr. Elizabeth Tullis
0:13:43 | Dr. Elizabeth Tullis begins Plenary 3 presentation
0:16:06 | A time of change
0:16:15 | The face of CF then
0:16:26 | The face of CF now
0:17:58 | Population projection: change in the CF population
0:20:31 | Lung function projection for the future
0:23:30 | Change in complications
0:26:05 | Mental health implications
0:27:27 | How to recognize new complications
0:29:10 | Change in significant events
0:31:47 | Change in how people with CF view themselves
0:33:44 | A time of uncertainty
0:34:22 | Video of Becky Skinner: an adult living with CF
0:37:40 | New uncertainty for people with CF
0:38:40 | New uncertainty for healthcare professionals
0:39:39 | Meeting the challenge
0:40:46 | How does the CF community prepare for the future?
0:41:39 | What can people with CF do?
0:43:45 | What can the CF team do: Reflect
0:45:04 | What can the CF team do: Plan
0:46:49 | What can the CF team do: Readjust
0:48:08 | What can the CF team do: Adapt
0:49:39 | What can care center directors do: Inform
0:53:44 | National CF organizations
0:58:40 | Improving detection and diagnosis of microorganisms
0:59:58 | Mucolytic therapy in the era of CFTR modulators
1:01:16 | International collaboration
1:02:39 | Closing remarks
Originally recorded November 5, 2022.
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