Family travel world before children go blind - BBC News

A Canadian family is travelling the world before their children go blind.

When three of Edith and Sébastian’s four children were diagnosed with a genetic disease that will eventually leave them blind, they decided to give their children as many visual memories as they could - and see the world.

Retinitis pigmentosa is a condition that people are born with and carriers of the gene often do not show signs or symptoms.

The family is six months into their year-long trip and have so far travelled to Namibia, Zambia, Tanzania, Turkey, Mongolia and Indonesia.

#Canada #BBCNews

[rubysunn]

"I'm going to not show her a book, I'm going to take her to see real elephants and giraffes."
Wow. What great parents. Respect to them

[holmhelena]

My husband was told as a child as well that he was going to go blind. He is 70 now and can still see. He has some blind spots and cannot read books easily anymore but it doesn’t affects his life much. When we first met he would look at me all the time because he didn’t want to forget any detail later on how I look. By all statistics he should have been blind long time ago. As he likes to say, everything is of a person.

[htedf]

Respect for these parents honestly couldn’t imagine having to go through that, my prayers go to them 🙏

[hannahselvin]

My brother in law was diagnosed with retinitis pigmentosa at the age of 17 and told he would go blind before the age of 30, but thank God he is 58 now and can still see. He has lost some peripheral vision but he can still see quite clearly otherwise and even reads books well. I pray that this will be true for your beautiful precious kids as well.

[daniellean]

1:39 "I don't want them to see what is happening to them as a curse or something terrible, but I want them to see that this is their path in life and they have great challenge but they have the tools to face those challenges." Well said, Mommy! ❤❤

[paulabrown]

These great kids have seen more of the world than most people. This family is a blessing.

[polemius]

Sweet children. The parents are wise, accepting their kids' realities and preparing them to have good lives.
The parents are not afraid to see what IS, and deal with it!

[XiraKira]

The children are so blessed their parents can afford to do this! What a great thing their parents are doing for them.

[jatinthakur]

its amazing just how much parents do for their kids

[AlotoNagaTV]

A huge respect for their parents for doing their best to make their kids see everything they could.

[Drew-woud]

Life is not a problem to be solved, but a reality to be experienced. 🙏

[christiea.]

I’m a teacher of students with visual impairments/blindness and this is the sweetest thing I’ve seen 😍. I’ve worked with a lot of kids with RP and the experiences their parents are giving them will be invaluable as they continue losing their vision. ❤❤❤

[simply.rowena]

Wonderful core memories that these kids will have for a lifetime. It’s good that there parents are fortunate to give them this experience.

[oBraveHeart]

My mother has RP, and I would just like to take a moment to thank her for the best childhood and the happiest days of my life. She created the safest environment for us to grow up in. We never needed or felt like we are missing something. Our household knew what is it to love your siblings. To take care of one another. To respect one another. I’m 28 and my family is the most precious thing in my life and I would gladly give my life for my brother or one of my sisters. I knew what it’s like to have a best friend from a very young age. In my case, I had 2 sisters and 1 brother as the closest people to my heart. My mother did all that without her eyesight. Today, she is the happiest woman alive. Always telling us how proud she is of how we turned out. She tells us that we are her eyes and that she sees the world through us. Not a day goes by where we don’t kiss her hand and forehead. She was, still is, and forever will be treated like the queen of our lives. May God grant her health and long life to see us reach the highest of social places. To see us raise our children the way she raised us. I love you, mom. No matter how long we live, we will never be able to repay you for all the things you did for us.

[mashroom]

I’m glad that the parent have the ability to support their kids and make real memories with them instead of just worrying about their condition and make the kids life stressful
This is a really great way to deal with such a situation may God bless them

[nazar]

The love & support of the parents is incredible.

[Pudpuds-kk]

These kids are so precious. I just wanna hug them. I hope one day technology will be able to cure blindness.

[rehanaturabali]

This lady has so much courage. May she and her family be blessed.

[huntrrams]

This is the saddest thing I’ve seen. I’m so happy the parents are doing this.

[halobaby]

That seriously just shows how much these parents love their children. Wow.