Mandy's Story of LIVING with HCM

One patients story - Mandy Housenick, Sports reporter, (Allentown PA) and HCM patient since age 15 shares her story of being a teenage athlete one day to HCM patient the next.

[marilynmainwaring]

Thank you for your extreme positivity 🌺I have HCM and have very little symptoms but that doesn’t change the seriousness of what I have. Sidelined but LUCKY and THRIVING 😃🥰👍🙏❤️😘

[Onurgzl]

I was diagnosed when I was like 21. It shattered my life just knowing I have a heart condition that can end my life any second. After seeing my uncles pass away one by one from it, it’s not easy to cope with. Now it’s constantly in my head, I’m constantly listening to my heart beat, anything happened to me I relate it my heart. I have caused myself symptoms from being anxious about it. Now it’s hard to tell if it’s anxiety or heart related . Tbh I’ve never had symptoms, I get palpitations now and then but the doctors just tell me it’s normal . I was seeing my cardiologist every year and every time all my results came back normal . She told I have a normal heart weirdly and there is no thickening or irregular heart beat. She told me live normally and come every 2 years instead . I haven’t been past 4 years maybe I should go but just watching and hearing stories gets me more and more anxious and hate life

[bigboyliving]

I was diagnosed with a heart murmur growing up come to find out at 20 i have HCM and had mutiple small heart attacks and was told i was Blessed and Lucky to be alive

[jameschristensen]

I experienced sudden cardiac arrest. I too was misdiagnosed and was treated for asthma for 16 years. Even after an episode of sudden cardiac arrest, and having an angiogram, I was told my heart was clear. HCM is real and hereditary.

[bigboyliving]

I lterally tear up when i think of the day i was diagnosed

[JackKing]

Hi have HOCM. I don't do sports so I guess it's a good thing in a way, but I do exercise to keep healthy...and eat healthy where I can...don't smoke or drink either...

[pudge]

I have HCM and I got open heart surgery. They cut out a muscle mass that was blocking the valve function of my heart. WHERE is her scar on her chest. She should have one like mine  3:48  A scar that starts 2 inches where your neck begins on your chest. IS this before her operation ?

[jennychong]

I was diagnosed with HOCM when I was 19 years old but i was having chest pain when i was 10 years old. Whereby my dad didnt bring me to doctor for further check up. This HOCM causes me trauma and succumb me to stroke during last Dec. Till now I'm yet recovered from This HOCM is really a killer!!!!

[charliedumesniljr]

i was diagnosed with HCM at 2 months old i was never able to play sports but do marching band

[a]

My nephew died in a Hotel room with sudden cardiac arrest. Autopsy showed HCM. He didn't know he had it..

[dainbaughnsmith]

When I was diagnosed with HCM, my doctor just told me to monitor how I feel.

[jimmygold]

God Bless the cardiologist thinks I have this Go

[joeb]

Why not push for a septal myectomy or alcohol ablation? I’m currently getting medically separated from the navy for HCM and plan on getting to a center of excellence as soon as I’m home. I’m not gonna stop until I get the answer I want. I can’t do really any physical activities anymore and this is no way to live.

[usmankiyani]

disguised at 31..:(..lving on medicine..

[cattube]

My daughter get almost same heart defect as you, but she is only three months old. Doctors in Children Hospital Philadelphia kind of gave up. Now I am bringing her home without treatment. Now only Allah can fix her.

[jamesross]

Hi
I have HCM and swim competitively.
In fact exercise is recommended.
Comments, please.

[shabanarahim]

My mom is diagonosed of hcm her age is 55 how can i help her to control it

[hotlatino]

So basically your just on meds. Must've these videos end up wit the person saying thanks to the Lvad that bridged me towards getting my new heart. You were just on medication?