Fibromyalgia | Dr. Ami Ben-Artzi - UCLA Health

Part of the UCLA Health Lecture Series: Empowering, Engaging and Educating: What Every Rheumatology Patient Needs to Know
June 22, 2013

[amyconfides]

This was very insightful. I have Fibromyalgia, diagnosed at 44 am now 48. This is also information I will share when friends who assume there is a Solution to my pain.

[ameliacook]

This is blowing my mind I’m finally understanding my diagnosis

[sylviaoesterwinter]

After two years of this craziness and hours every day/night doing research, , , how is this just now showing up in my feed?!

[albertmcfry]

Had fibromyalgia since 2009, went from Dr. to Dr. with absolutely no help. Went on diets, meds, ex cerise with no help.the only thing that makes it bearable is opioids.

[ritaberube]

Read book: What Your Doctor May Not Tell You About Fibromyalgia by R. Paul St. Amand MD, and Claudia Craig Marek

[honerdcouster]

Its cerebral spinal fluid leaks and a sacral tarlov cyst period.

[dupduplooy]

i am 76 years old and living and dealing with fibromyalgia for about 30 years. what a life.new medicine and science i am living with accepttance. this is terrible but life goes on. thankyou america for your inputs in my life. i am a pensioner and still tries to live a normal life.

[katiehewitt]

Why in Canada are we so behind in our resources and support for this ? I was diagnosed in 2017 and basically left to figure out so much on my own it’s really really frustrating so many countries seem to be more knowledgeable then Canada on fibromyalgia

[a.p.]

Have wondered why there is so little known about fibro when so many suffer? This resonates with me, finally information. Thanks.

[angelathornbury]

Helpful, I’ve had a whole life living with fibromyalgia, childhood trauma makes sense now. I was about 4 years old when a doctor told my mother there was nothing wrong with me and she was to take me home and give me a good spanking. I hid behind fibromyalgia in fear of being spanked and hurt more. I’m guessing now to spank a child with fibromyalgia would hurt more than average. I thought as a child everyone has this pain and it was normal and I was ashamed to talk about it. I wear my badge of honour proud to acknowledge I have fibromyalgia and I’m not disgusted in myself anymore. If any doctors read this please be mindful and respectful to the poor patients who have it. Hopefully future generations won’t suffer the way we do. 60 had two heart attacks, now fibromyalgia gives me the false pain of attacks almost daily, some sort of neurological damage where my brain does not acknowledge I’ve been fixed. My heart is fine but the pain remains.

[katehagno]

Hmmm, what about brain inflamation called fatigue on top of rest of symptoms?