They Thought He Was Faking It 🤯

They thought that Kevin might be faking his brittle bone disease.

Although the condition is extremely rare the boy is not faking it as seen by the scars from the metal rods implanted in his legs.

This disease causes a massive collagen deficiency which leads to brittle bones that break easily and it affects about 1 in every 16,000-20,000 births.

#shorts #rarediseases #bonehealth #medical #doctor

[vickicali]

A whole lot of adults should feel ashamed questioning his sincerity. This little guy has more intelligence, love and compassion than they'll ever have.

[daemon]

I don't understand this mindset. I don't think I ever will. He's been through so much and still has to deal with people questioning him.

[amysmiles]

What a sweet kid. He has obvisiously been though a lot and must have a great family. He is right, Spread love and kindness❤

[denisehollins]

It's so sad that a kid had to prove that he has oi even though people should know by now that kid will never lie about something like this it's so sad and I hope people have more of a better mindset. ❤ 🙏🏽

[Dtx.kcxx]

May God bless this young man's soul 🙏 ❤🥰😊

[David_K_in_PA]

I'm 53 and have OI. First broken leg at 8 months old and many fractures since then.

Today, I'm a Registered Nurse and take all I've learned as a patient and try my best to give back to my patients. Even something as sinple as returning the bedside tray to where the patient can reach it after I've moved it to assist the patient.

I have OI, yes.... But, like this precious young man, am Blessed in many other ways.

Thank you, Doctor, for this video 😊 ❤

#UnbreakableSpirit

[alyshataylor]

How precious and well-spoken he is for his age. ❤
TLDR; Is what I’ve heard referred to as “butterfly skin” also related to a collagen deficiency?

I do have a question. This reminds me very much of “butterfly skin”. I cannot remember the proper name but there are multiple types, one of which involves the skin not being properly attached to the layer beneath it? Sorry for the poor description.
A baby boy in my family passed from SIDS at 6 months, he had the condition I’m talking about. His skin would blister and peel from changing his clothes, diaper, holding him, etc. I don’t know how his poor mother bore it, he was often screaming from pain or discomfort. Bathing, holding, rocking, patting… many of the things done to comfort an infant sometimes caused him immediate blisters that would open. It was awful.

[Kietraudt]

My cousin also has brittle bone disease (type 4) and had to get rods in his legs. He has had a fracture in his skull, fractured legs, a broken arm, and he’s only 7! He also has autism and can communicate clearly and understands what he can and can’t do, and is overall just a sweet kid. He learned multiplication and division when he was in 1st grade (I can’t even do basic multiplication and I’m in 7th grade) he can also play video games insanely well. I once rage quit when he kept beating me in rocket league. Moral of the story, just because someone is built differently and learns differently/does things differently, doesn’t make them any less able than you and I. Please be nice to these kids and don’t treat them any better or any less than you would with a person without these different abilities. ❤

[staciyoung]

We spent much of my childhood visiting Scottish Rite with my brother in the 80s. 9 broken bones in 2 years. No sports. Learning disability. What a crazy time.

[tonyrandall]

Hang in there little Man, hope you feel better at least🤞🙏👆😢

[DevilOnlyKnitsLace]

I love Kevin! I've been disabled for 27 years. People don't think twice about questioning me about my disability! I've had people call the police on me when I park handicapped. Others get upset anytime I receive an accommodation. I don't feel I need to wear a sandwich sign that details all the surgeries I've had, all the metal in me, all the years spent in physical therapy, all the surgical complications, and all the doctors I've seen & will see in the future. I survived a head-on collision with a 1 ton truck. People who question me fail to understand I survived that wreck, but I'm no longer the person I was a second before the hit.

I want to celebrate Kevin! He's here, he's happy, and he understands we don't have to be perfect to have a wonderful life.

[alexsullivan]

People believe these teenagers on tiktok saying they have tourettes and DID and then question this little badass....screw whoever questioned him, for real.

[sandraboffin]

You are a gorgeous little man good luck and you are very brave 💙 x

[jfro]

I had the pleasure of teaching a young kiddo with this disease… if we take anything away from this short video. Don’t underestimate people with Osteo imperfecta!

[neekieeee]

Omg, this is so sad. The ending tho! Way to go, you little fighter! You're here for a reason!

[sosovain]

Such a beautiful kind soul this little guy has ❤we can learn a lot from him. I hope he has the best kick ass life

[nawafSarathee]

😭🥹 I have type 1 osteongesis impefecta