Choosing Best Seizures Medication

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#DrOmarDanoun #Epilepsy

[amandapolanco]

Interesting information DR. DANOUN, thank you for this advice ! GOD bless your heart 🙏🏻 ❤️ 🙏🏻

[Jae-ytyt]

I’m taking lamictol and a few months the dose was increased to 150mg and then I changed pharmacies to get it from mail order. I have developed a rash that has spread quite a bit and at first I thought I was getting shingles but then it spread too much all over my body. I have seen 5 doctors in the ER the past few months and talked to the neurologists nurse a few times and they kept saying they didn’t think it was lamictol. So I decided to go back to the previous dose from the first pharmacy because I have a lot left from before he increased it and the itching has subsided quite a bit very quickly. I don’t understand why so many drs are unwilling to listen to the patient and change the medication when it’s clearly needed! They say if you stop taking it you’ll have seizures again. Okay but this is far worse than the seizures and I’m still having a lot of seizure activity anyway! It’s not as intense as it was before I was put on meds but I think the stress of the rash is triggering it. And there’s the “could be fatal” warning that is very concerning! I have a hx of adverse reactions to virtually everything! So I get that I’m a complicated patient and most drs probably don’t want me as a patient. I don’t take it personally because I wouldn’t want me as a patient! My body is ridiculously impossible! But still drs take an oath to first do no harm and I feel like this is HARM‼️ I’m definitely not enjoying life with this‼️ I think it’s time to find a new Dr‼️ I know not to just stop because that’s dangerous. A couple of times I slept in a few hours and was a few hours late taking the 💊 and I felt like a earthquake was inside my body‼️😖 It was the worst feeling and I thought I was going to die! But I fear that it is going to kill me if I keep taking it. So I’m starting to wean myself off of it because it’s clearly a problem and I’m not ready to die yet!

[marysolomon]

U R AWESOME!!! My son is on carbamazapine. It seems HELPFUL!

[meierboy]

I'm on 4 seizure meds and got a VNS implant last year. I have autoimmune encephalitis Kepra was the first i was on.

[thebravemuriel]

I'm on kepra and am bipolar and it doesn't cause any depression or rage what so ever and really helps control my seizures of course though I wasn't put back on kepra until I ended up in the ICU because of a tonic clonic seizure witch my seizures don't show up on EEG at all and them treating my seizures as non epileptic seizures didn't work they have done that for years and eventually it landed me in the ICU because I stopped breathing completely rather than just having apnias and the respiratory destress by its self the seizure completely stopped me from breathing

[nikitasimmons]

I HAVE SEZURES WAS BORN WITH THEM I TAKE TWO KINDS I JUST GOT OF HOSTIPAL TODAY

[CarConnectNigeria]

I just had seizure a day before yesterday. And broke my jaw🥺

I don't just know what to do🥺

[carolbilbao]

My son is on Xcopri in the states, 2800 a month. He is on Medicaid. Once he goes beach to work I’m pretty sure they won’t cover it. It’s very upsetting that he found a drug that works and won’t be able to afford😂it