Все публикации

0:47:35

Patient Perspective Series 2022

2:07:29

rareDIG RDD 2022

0:19:19

rareDIG 2021 - Rare is not Rare: A Common Cause of Childhood Morbidity and Mortality

0:13:53

rareDIG RDD 2021 - Thriving Beyond a Rare Cancer Diagnosis

0:24:59

rareDIG RDD 2021 - Canada's Rare Disease Strategy

0:15:28

rareDIG RDD 2021 - Hypophosphatasia, A Patient Perspective

1:06:41

A Journey Through Rare Diseases as Parents and Leaders

0:01:21

rareDIG RDD 2019 - Recap

0:17:52

rareDIG RDD 2019 - “Oncohistones“ in Cancer: How to Turn the Cell’s Symphony Into Non-Harmonic Rap

0:19:46

rareDIG RDD 2019 - Treatment in Lysosomal Storage Diseases: A Shift in Paradigm?

0:19:28

rareDIG RDD 2019 - Understanding Rare Disease: Learning Through Listening

0:17:04

rareDIG RDD 2019 - The Scleroderma Patient-Centered Intervention Network (SPIN)

0:17:21

rareDIG RDD 2019 - Dr. Google and the Standard of Care

0:08:54

You can make the difference | Joseph Galli | McGill Rare Disease Day 2018

0:04:05

Loeys-Dietz Syndrome | Johane Gauthier-Galli | McGill Rare Disease Day 2018

0:11:30

I'm an adult...now what? | Natalie Cinman | McGill Rare Disease Day 2018

0:18:57

RD research and the proper practice of medicine | Eric Shoubridge | McGill Rare Disease Day 2018

0:12:47

You can make the difference | Johane Gauthier-Galli & Joseph Galli | McGill Rare Disease Day 2018

0:19:00

Digital Shortcuts for a Rare Disease Odyssey | Adrian Thorogood | McGill Rare Disease Day 2018

0:06:40

Luca « Lazylegz » Patuelli kick starts rareDIG's (McGill) first Rare Disease Day!