Все публикации

0:01:55

Rare Bootcamp: Empowering Rare Disease Warriors for the Battle

0:26:52

Access to Health Care: The North Carolina Newborn Screening Story

0:07:50

Living by Design: Amanda's Wilson Disease Story

0:04:35

Life with TIO: Ann’s Story

0:28:08

Gene Therapy: What Does It Mean for Rare Disease Communities?

0:05:44

LC-FAOD: A Global Community

0:03:48

Life with LC-FAOD: Tasia’s Story

0:05:17

Managing FAOD Together: Michelle and Jake’s Story

0:01:45

Regina: Rare Strength in Caring

0:04:01

Life with GSDIa: Jonah’s Story

0:02:08

Life with Osteogenesis Imperfecta: Cindy and Matthew’s Story

0:03:40

Going beyond for Mason | Angelman syndrome (AS) (Full-Length Video)

0:02:47

Going beyond for Levi | Duchenne muscular dystrophy (DMD) (Full-Length Video)

0:02:17

Life with XLH: Cheryl’s Story

0:00:31

Going beyond for Mason | Angelman syndrome (AS)

0:00:31

Going beyond for Levi | Duchenne muscular dystrophy (DMD)

0:02:12

Ultragenyx is building a gene therapy plant

0:00:56

Built to Be Rare

0:04:45

Quick Tip Caring for Yourself While Caring for Others

0:02:48

Ultragenyx: Built to be Rare

0:02:49

I'm Rare at Ultragenyx

0:03:46

Ultraimpact

0:03:04

Ultrafocused