Все публикации

1:27:37

NORD®'s 2024 Rare Disease Advisory Council Stakeholders Webinar

0:08:32

Información importante para personas elegibles para Medicare para 2025 y años posteriores

0:07:08

Información importante para los inscritos a Medicare para 2025 y años posteriores

0:07:10

Important Information for Medicare Enrollees for 2025 and Beyond

0:07:41

Important Information for Medicare-Eligible People for 2025 and Beyond

1:00:14

Rare Disease and Emotional Wellbeing: A NORD Webinar

0:52:16

How YOU Can Help: Patient-Driven Research in Rare Cancers (Webinar)

0:01:06

Attend the 2024 NORD Breakthrough Summit - October 20-22, Washington, DC

0:02:20

Highlights from the 2024 Living Rare, Living Stronger NORD Patient and Family Forum

0:05:57

Natural History Studies for Drug Development Explained

0:02:30

Drug Repurposing - Rare Disease Drug Development Series Preview

0:01:03

Navigating Expanded Access - Rare Disease Drug Development Series Preview

0:00:33

Gina Glass, Executive Director of Dreamsickle Kids, on Reauthorizing the Rare Pediatric PRV Program

0:03:09

Dr. Annette Bakker, CEO of Children's Tumor Foundation, Explains the Importance of Pediatric PRVs

0:04:41

Dr. Leslie Gordon, Progeria Research Foundation, on Rare Pediatric Disease Priority Review Vouchers

0:40:48

Why Saving the Rare Pediatric Disease Priority Review Voucher Program Matters (Webinar)

0:08:05

¿Por qué debería hacerme pruebas genéticas incluso si tengo un diagnóstico?

0:05:49

Why should I get genetic testing if I already have a diagnosis?

0:07:54

Pruebas genéticas para enfermedades poco comunes y no diagnosticadas - NORD

0:06:14

Peter L. Saltonstall Tribute - 2024 NORD Rare Impact Awards

0:02:20

Highlights from the 2024 NORD Rare Impact Awards

0:43:51

Rare Breakthroughs in Research and Care - 2024 NORD Living Rare Forum

0:36:50

Finding Purpose Despite the Pain - 2024 NORD Living Rare Forum

0:47:58

The Benefits and Limitations of Genetic Testing - 2024 NORD Living Rare Forum