About the NF Network

The NF Network was founded in 1988. We are the leading national organization advocating for federal funding for NF research and building and supporting NF communities. We seek treatments and a cure for neurofibromatosis by promoting scientific research and improved clinical care, and by providing outreach through education and awareness, offering hope and support to those affected by NF. The NF Network’s goal is to eradicate the health issues, pain, isolation and uncertainty that the diagnosis of NF inflicts.

[williammeredith]

I was diagnosed with NF at birth or soon thereafter I was the only one at 11 siblings to be diagnosed with NF my mom and my dad didn't have NF I guess I was the chosen One.
My stomach and chest are covered with tumors and my back my arms I got a few on my face but nothing too bad I'm disabled I was brain damaged at birth I was 10 lbs 2 oz and my mother nearly led to death the doctor that was on call that night would not do a cesarean we both almost died but by the grace of God I'm here.

[tanyiliang]

Hi, YL from Malaysia here. Don't have any of the three forms of NF myself but I was the boyfriend of a NF2 fighter for a decade until her death; I've participated in the NF Network Webinars as a question-asker from the audience and after seeing this generally well-done video, I have one question.
I'm really curious - but which kind of NF are we talking about here; are we talking about NF1, NF2, Schwannomatosis - or all three disorders in the NF family of disorders? It can be a bit confusing if one doesn't know that there are three related disorders in the NF umbrella, each with different treatment options and approaches.

[michelleyanagisawa]

Do you have a réferral tn an Assted living in s. cal you recôend

[michelleyanagisawa]

MLY: ho much wil Medicaid pay for if you have NF2