I had Symptoms for MANY YEARS then I got a RARE BLOOD CANCER!

preview_player
Показать описание
Myelofibrosis is a rare type of bone marrow cancer. Patient advocate Ruth Fein Revell was diagnosed with myelofibrosis in 2018. But originally, she was diagnosed with essential thrombocythemia (ETE) at age 38 after developing blood clots and it later changed to polycythemia vera (PV) and eventually #myelofibrosis.

In this discussion, she's joined by top myelofibrosis specialists, Dr. Raajit Rampal with Memorial Sloan Kettering Cancer Center and Dr. Gaby Hobbs with Mass General Cancer Center who explain first symptoms, latest treatments and clinical trials.

#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #myelofibrosis #MPN #bloodcancer #cancertreatment #myeloproliferativeneoplasms #essentialthrombocythemia #polycythemiavera #myeloproliferativeneoplasm

* Thank you to GSK and Karyopharm for their support of our patient education program!
The Patient Story retains full editorial control over all content.
Рекомендации по теме
Комментарии
Автор

So happy to hear you are doing well on the clinical trial. Sending love ❤️ 😍 and support ❤.

alohatvn
Автор

So great your dealing very well with the clinical trial ❤❤

stavroulapsiharis
Автор

God bless you, my son died from myelo Fribrosis

tammytanner
Автор

They probably told you that you were anxious or depressed. Or it's just because you're a mom

dkasper
Автор

I just wonder, do you ever get tired of all the symptoms, blood work, and always feeling awful 😢 I sure do!!! ❤

terrishalda