Struggling to Express Emotions and Pain as an Autistic Person #autism

Hi! I'm Orion Kelly and I'm Autistic. #ActuallyAutistic #orionkelly #autism #autismsigns #whatautismfeelslike #asd

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ABOUT ORION:
Orion Kelly is an #ActuallyAutistic vlogger (YouTuber), podcaster, radio host, actor, keynote speaker and Autistic advocate based in Australia. Orion is all about helping you increase your understanding, acceptance and appreciation of Autistic people.

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[nyasmith-assis]

I am so exhausted. Thank God for you and putting words to what I am experiencing.

[scottdrury]

I was very happily diagnosed AS 2 years ago at age 56. All the awkward, seemingly disparate pieces of my life suddenly fit together. I took the combined advantage of this new wholeness of self and my age and realized I have no more fucks to give to anyone who might try to judge me. So liberating! Decades of worrying what others think, turned around and put right back on those who once dished it out, where it belongs. Don’t like who I am and how I behave? Deal with it, cuz it’s their problem now, not mine. I love and enjoy my life now for the very first time.

I wish the best for all my AS sisters, brothers, and others out there. Be your amazing selves, without apology.

[michelebriere]

I got over that sense of being judged a long time ago. I learned that someone's problem isn't my problem.

[jwmmitch]

Man last night I was feeling very down. I could tell I was angry, my gf asked where I could feel it in my body (a somatic awareness tool we both know) and it occurred to me I couldn't feel the anger anymore... I hate dissociating

[GonkyWonkler]

So accurate. This sums up the primary reason for the self loathing I feel throughout the day.

[kaddylady]

I remember being upset when a therapist asked me "how are your moods?" I got so angry and confused for no reason.

[BlueRoseHelen]

Numb is usually my answer to how i am feeling. I then i get accused of being depressed ....i didn't say depressed i said numb!😊

[ashleylovepace]

I am so grateful for you! I have a 17 year old intelligent autistic son who struggles with all the things you speak of! You make me laugh constantly because you remind me of him so much. Thank you

[IExpectedBSJustNotThisMuchBS]

As a person who is AuDHD, I learned to calm that response and not allow others to have power over my emotions. Not saying every autistic person can do this, but I did. Doesn't mean there aren't times I'm pissed off, because there are things to be pissed off about, but I don't feel rage all that often. And by not being reactive I have a better chance of realising what's deserving of anger / upset and what's not.

[MissMausoleum]

I'm trying not to cry, because this is SOOOO relatable😭

[AbiAliceNchains]

I realized that because I take using the correct words for when I explain what I’m going through emotionally it isn’t seen as true or it’s brushed off as not as bad because I’m not supposedly showing accurate facial expressions or displays of emotion or desperation when just talking about it deeply is me conveying my emotions because I’m feeling it but I thought I was showing my emotions I have alexythemia so I guess it plays a issue into showing it but yeah often people have said I’m being dramatic for when I’m saying something hurts or etc because my face being neutral or not matching my words it doesn’t validate them which is so odd to me

[jrbohan]

I've started using the Jones-davis pain scale with my doctor. It makes much more sense to me, and as long as your doctor knows what the scale is, communication is much more clear.

[jaidynheadford]

Whenever people tell me how i’m doing, i try my best to not respond to questions like that. I try to just say Hi or Hello instead.

[WhoThisMonkey]

When it comes to pain, I understand the level of pain I am feeling very well.

I rate it compared to previous pain.

Kidney stones are my 10, a hang nail is my 1.

I use these as my two constants to be able to accurately describe the level of pain I am in.

Even though I can feel the pain, I can kind of just switch off to it and ignore it.

Emotions, I don't have a clue, I can notice the symptoms and try and figure it out from there, but I rarely work out how I am feeling.

Figuring out I love someone is always a beautiful revelation to myself, it's only happened twice in my life, and oh boy do I love that emotion, it's so warm and I feel so much energy, I just have to do things to burn it all off. 😂

[OneGuyOnline]

Thank you, thought I was alone in this.

[meows_and_woof]

Interesting, that’s kinda new to me, my son was diagnosed with autism when he was 4( he’s 16 now) and he’s better at expressing his feelings than most of the people I know, he can explain in such detail all of his emotions and he’s so excellent at reading people’s emotions, he constantly looking at my face to catch any change of emotion, I can’t hide the change in my mood from him because he gets it instantly, from my face, even from my voice, body language.

[Davide]

why is everything he says feels so accurate to me?

[raineed]

It would be nice if you teach us how to handle the situation from the partners position as to what to do... it is very hard to communicate but it is still needed... so if you struggle with communicating feelings what is your wife, partner, family to do... how do we go about it? ....

[stillnotstill]

As a person with severe chronic pain issues I have Opinions on pain scales, different scales, which scales will get health care workers to listen MAYBE and ones that will absolutely risk people dismissing you, etc lol

[high_stakes_ikea]

The 1-10 scale is my BIGGEST pet peeve 😭
Like? My pain scale level 7 might be very different than yours? I have no baseline to go off for the ratings