Lewy Body Dementia Documentary

[sunnybluebird]

Such a moving video. My mom suffered with this cruel disease. It turned her into someone I did not know before she died. The most difficult thing we have ever endured. Prayers to you and your family.

[marycontreras]

You explain this very well. Glad you you were searching for the right treatment for her.

[chizzy]

Thank you so much. I was looking around and found this.I will now get my mum to the neurologist, it seems I'm the only one who's noticing.I was moved by you and have now taken some courage from you to help my mum.Best regards from Norfolk, U.K.

[missourimom]

This is a lovely and moving video! Thank you for sharing your Mom's story. It's easy to see what a wonderful person she was. God bless you for taking such good care of her!

[AUniqueTreasure]

I'm just beginning our story with my mom and this disease. I can totally relate to your feelings about your mother. This is one of the most tasteful and educating videos I have ever watched. Thank you for sharing this.

[jiujitsukitty]

What an amazing and strong daughter and woman you are. Your mother was lucky to have you <3

[msuehale]

Your Mother taught you well. This was a beautiful yet heart wrenching story you have shared. Prayers.

[jamesklein]

Thank you for sharing your journey. I had an identical 7 year experience with my own mother's illness in the late 80's. Despite being a physician at a university medical center myself, it was a very difficult road, unpredictable, frustrating, and frightening. Almost as if one had to beg for help, care, and direction in enduring the experience. Clearly, you understand the scripture quote "for it is in the fire that gold is tested".
You are gold. You did a great job. No daughter could have done more. Take pride and comfort in the outstanding, loving, caring role you were compelled to fulfill in the long last chapter of a precious soul. God bless.
Jim Klein MD

[paula]

I am so sorry for your loss. You are a wonderful daughter and thank you for sharing your wonderful childhood and your mother love. May she rest in peace. God Bless!

[HeatherLeslielovesheathbars]

I'm 43yrs old and was just given a diagnosis of LBD today. It hasn't really sunk in yet, it's taken my neurologist over a yr to diagnose. I have epilepsy, Crohn's disease, chronic pancreatitis, Trigeminal Nuralga, Addison's disease and gastroparesis. I started having the hallucinations after being hospitalized for bacterial pneumonia in February after having tested positive for A flu.
I'm trying to do as much research as possible so I know what I'm dealing with. Its heartbreaking because I have a 29yr & 10yr old daughter and 2 granddaughters, I haven't told our oldest yet bc it hurts my heart to tell her.

[fredMplanenut]

Thank you for sharing the celebration of this lady. This gives me comfort when I am coming to terms with the knowledge that my best friend now has this disease, and goodness knows how the next few years will be for him, his wife and their family.

[mariaruane]

A beautiful lady. Well done for sharing your story. Keep telling your story as I was totally oblivious to Lewy Body and have recently met a lady who I care for who has it. You put things so well and I can identify with a lot that you said. Thank you.

[jamesfishin]

Thank you for this, dad was just diagnosed last week.

[sandrafunderburg]

I just lost my mom 18 days ago from so many of the same 4hings you have described. It seems to me that we don't know enough to help our loved ones until it is too late. Mom lived 90 years, mostly healthy, except the last few. Thank you for sharing tour story

[rachelfriedman]

The tribute to your mother is very loving and informative. Thank you.

[OfficialNetDevil]

My mom died from this on December 8 last year. It is truly one of the cruelest diseases our family had to endure.

The only thing that helps is we believe she is in heaven now and can walk again.

I’m truly sorry your family or any family for that matter ever has to deal with this horrendous disease.

[maryramlet]

My younger brother has this. Thank You for sharing. I know my family is not alone.Thank You

[sammyrichardson]

Thank you so much for your honesty and openness.
I am sorry for your loss but hope your good memories are vivid and your smiles are big.
Wishing you a Happy and peaceful NewYear from the U.K.

[lilyrose]

God bless you beautiful daughter. You were the sunshine in her life, her advocate, her best friend, and constant. My mother suffers from a cognitive disease Thank you for sharing your mother’s story. I am not alone.

[joanyswatch]

WOW. I can’t believe how this story is an exact replica of what my mother went through. She too was diagnosed with Lewy Body dementia and passed in 2015. All the stages you’ve described my mother went through as well up until she was bed ridden for the last yr and half of her life.