What do you miss the most? #dementiacaregiver

The freedom you once had? The conversations you were able to have with one another? The ability to share your day and feel support? Dementia changes so much of our lives. It's okay to miss the things that have changed since dementia has entered the picture.
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#dementiacare #dementia #shorts #alzheimersdisease #alzheimers #alz #dementiacaregiver #caregiver #caregiversupport #caregivingtips #eldercare #seniorcare #familycaregiving #familycare #psychology

[STONEALICIOUS]

Conversation. Travel. Working. But this is my duty right now. For first time I do worry about my future. Never dreamt things would turn out this way. Unprepared ❤ Mom has had an extraordinary life. I miss how capable she was. ❤

[charleenwilkes]

Been sole caregiver to my almost 89 year old mother- with Alzheimer’s/dementia, leukemia, diabetes, stage 3-a kidney failure, and a few other ailments. It’s very hard, as she insists on living alone, at the home where she and my father, brother, and sister all lived. Thankfully, 30 years ago I was able to buy the house directly next door to my childhood home- so I’m always less than a minute away.

[ginnywhite-linn]

I miss having a two way conversation with my husband so badly.

[coraluz]

I needed to hear that it’s ok. Thank you 🙏🏻💞

[karlahoracek]

I miss having my husband and friend to share with and talk to about everyday moments. I miss being able to go places with him and travel. I miss being able to have a dinner with conversation about family and feelings and ideas. I miss him in every second of every day. Life was not always perfect and without struggle, but together we prayed for help and guidance and did not give up on our love and each other. I miss it all! I am so grateful for the blessings we had and now as he is living at a facility, I am grateful for each day the Lord gives him! But, I still miss him.

[carolynhughes]

❤I am grateful to have the time I have with my love one. I do miss some times. But creating new memories. ❤

[melissasinclair]

It's not even a little while for many of us. We are on year 7 or 8. It's been pretty bad since the end of the pandemic. My poor teen hasn't had a normal teenage life because of it.

[lisamaris-shaab]

I miss my kids and my husband and my cats and my home. I'm with my elderly parents all the time and glad I can be, but I am 500 miles from the family I raised and the life I lived and the job I had and some financial security and it's one of the hardest times of my life.

[jelan]

😭❤😭❤😭❤....thank you for that permission. I've never received it from anyone else & I've painfully needed it😭

[elizabethlee]

Yes right. Have given up on many things but our caregiving job for our loved ones is worth it all. Yes it is not easy, it’s frustrating, it’s hair pulling times sometimes. And it can be lonely times. For myself, I find great comfort in prayers and my faith in the good and merciful God. Here I find strength and joy.

[katheleenanderson]

It’s a hard pill to swallow. I keep praying and do my best.❤

[danettewarner]

I miss the conversations, the funny happy woman my mom was. She’s so unhappy and thinks she’s going crazy. I so miss being able to take her places due to her weight & immobility, that empty spot at family gatherings & events.💔

[conniewright]

I miss being able to talk to my best friend, I miss our life together, I miss being able to visit my kids, I miss our horseback rides. I just miss the man I married😢

[SouthernLife]

Taking care of my mother inlaw but she doesn't think she needs us or remember. It's hard but we are here taking 1 day at a time. After having dad for 2 years, we had our last memorial day with him. Nothing like a 1-2 punch. How do you grieve when someone else needs you to be 100%.. 1 days at a time and find moments.

I just found you and thank you, thank you.

[lindabowman]

I miss socializing. No one wants to be around this.
Communication with my husband of 52 years is difficult. I have been planning an interstate move to a retirement community to be near our son. I feel the need to plan ahead while I am still healthy & able. He is resisting with every bit of strength he has left.
I just can’t leave this decision up to him. I don’t want to leave our home & friends either, but am overwhelmed with his care and total responsibility at home.
Just put our house on the market & in the process of purging. Very difficult decisions are being made & a ton of work to be done. As it is neither of us has much of a life. He watches reruns of sports events all day & I work non-stop as his caregiver & housekeeper. Hoping I have made the right decision. Just can stand leaving all this trouble to my darling attentive children. What would you do? I know this sale and move will send my spouse into a tailspin. What is the best advice to keep him calm? I am afraid to mention the word MOVING, for fear of the anger & anxiety he will exhibit.

[kennethforbush]

Life is simple. Not easy, and only God knows if ill get back to my residence. But even as mom has good and bad moments it'll be alright.

[marciabyers]

Actually having my real dad! He's somewhat here but not always! I miss not having much of a life either!

[auntrene]

I missed the conversations with my mom, but even though she was nonverbal, we shared frozen yogurt. If she was getting agitated, couldn't communicate with us, I'd say Mom let's go get some yogurt,
Into the car we go and we had a great time at the yogurt shop It calmed her right down, I miss that time.

[ruthking]

Thanks to mu son choosing gang & drug life I missed seeing him play sports, prom, graduation, a marriage, or having a career. Unfortunately he passed that same mentality to his 2 daughters who are circling the drain as I write this! 💔

[michellecobb]

I'm trying to remember that it's not her, it's the disease. I'm trying to remember to be grateful for all the moments I get to have, good and bad.