Type I and Type II Trigeminal Neuralgia

Type I and Type II Trigeminal Neuralgia brought to you by the Medical Student Neurosurgery Training Center.

Join Dr. Amir Dehdashti who serves as the director of cerebrovascular neurosurgery research at North Shore University Hospital and Professor of Neurosurgery at the Zucker School of Medicine at Northwell as he discusses Type I and Type II Trigeminal Neuralgia.

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[FlatMax]

16 years ago I had dental work done. The dentist administered a needle to freeze the area. The freezing lasted about 18 hours and I was left in pain with a burning sensation. I went back the following day and she re-administered freezing the same area in the same way. Since then I have had numerous neurological exams and have been taking pregabalin for the last 14 years in a daily basis. None of the neurologists were able to find a cause or an alternative treatment. I am never pain free with a burning sensation and the feeling of a pencil being driven through my upper right lip. The medication dulls the pain and sensations. They have kept the medication dosage low at 300mg/day. I assume that there was nerve damage during the dental work. Neither the dentists nor the neurologists believe this. They don’t see any connection between the two. I have learned to live with my situation. I haven’t given up hope of becoming pain free at some point in life.

[sleepisthecousinofdeath]

I have fibromyalgia, bilateral Trigeminal neuralgia 80% left side face. I went through ENTs for severe ear pain that I thought were ear infections. I went through allergists who thought my horrific inflamed sinuses were due to allergies and tried to pushed shots onto me. I went through dentists who tried to convince me to pull my teeth because of severe teeth pain which they thought was because of my roots. I went through countless primary care doctors who told me it was because I was depressed which I’m not, or it was in my head so “I won’t die” because I was young. I went through eye doctors who said my head hurts because of migraines and eye strain so they made me stare at dark blue lights, and get blue tinted glasses, or you have dry eye, it must be that. But no, they went to school for nothing, it’s ok I get it, they can’t know everything.

[baldknobfarmstead]

Ive been suffering for years. Extreme fatigue, tingling in left cheek and gums with metallic taste, feeling somewhat drugged or high, while body feels odd and can't function to work or live. Feel the worst when that taste and tingling starts. No pain. I have a vessel touching the nerve but none of my doctors say thats the cause as there is no pain. MRI's, years of blood work, several neurologists, I'm not getting answers and have lost the best years of my life. Could it still be Trigeminal Neuropathy?

[valf]

Thank you for the description of the two types. I have type 2 bilateral.

[jenniferschauf]

I have atypical trigeminal neuralgia tn2 and tn1. Never a break from pain with sometimes sharp electrical pain. . Mostly on left side of face. Pain going to my eyes nose mouth and shooting pain up my head. If I touch my eyes face I get pain especially during a flare.

[DavidCarter-ibvw]

Do you think chronic migraine headaches and TN are related?

[suzyashby]

I’ve had to go to dentist and facial docs every episode to confirm it was tn back in the day.

[RubyRabbit]

Why do most neurologists say there is no such thing as type 2 or atypical ?

[Yamaha.ha.ha.ha.]

Ive found prednisolone helps my tn a lot. 20mg morning and 20 mg evening. They cause me a little insomnia but the pain went. Hope this helps.

[suzyashby]

I just got diagnosed with type 2 TN. I’ve always have had type 1 management. The ten 2 is very unbearable

[Iamranasameer]

But isnt nvc are there among normal population too

[lauraquinn]

I have post herpetic neuralgia of the trigeminal nerve caused by a severe case of shingles along my trigeminal nerve and in my left eye. Therefore, i have a form of atypical trigeminal neuralgia. I have permanent damage to trigeminal nerve. I am in pain a lot of the time and then I might be lucky to have a remission for a little bit. The medications I have tried for the nerve pain have not helped, and the side effects were very bad. Any suggestions?

[dangacore]

I get occasional strong shooting pain in my left side upper teeth and have just started getting shooting/lightning/needle pain shooting through my left eye. Hopeing its not TN. It's mild at the moment and bareable.

[robertnewton]

Trigeminal type one type symptoms but in both sides at the same time for me
I'm a yiung male. Every where I read says it's impossible to have type one or type two on both sides of the face at the same time.

Well then how the hell is this happening. I'm starting to lose even more patience and I thought that wasn't possible. Meds are helping though with pain

I'm also reading that bilateral means there has to be another underlying cause like MS or a tumor


....

So I have sources telling me having pain in both sides at the same time isn't possible, yet it's happening to me. Started in left left then progressed to the right as well. I get pain now in three branches too. Very slight in the orbital branch though..

What do I do? I cannot keep not having definitive answers and honestly I'm of course really concerned.

Only thing I can think of is there's some literature about rare complications of the covid vaccine causing trigeminal neuralgia.

Got the one shot in 2021. Immediately after getting it got bells palsy for the second time in my life. Managed it with Prednisone went away... a few months later is the following:

Months later started having what seemed to be list of elasticity in my facial skin, very shortly after noticing that I had a bad facial injury on the left side of my face (while stretching the skin while shaving and had some insane pain near the left zygoma. Wouldn't go away for a few days then remained just dull in pain. Eventually went away. Seemed to heal then started having facial pain on left side of face like type one TN type symptoms.

Time goes on and facial skin elasticity seemed to get worse. Something to this day is still going on with my facial skin tissue and surrounding areas because I even developed bilateral enopthalmos in both orbits... confirmed by CT scan.

Eventually I started getting type one like pain in the right side of my face too.

And that's where I am now. The pain is present simultaneously in both sides, I still seem to have some type of weakening of the connective tissues of my facial skin and such, still have the enopthalmos, and am on cymbalta and gabapentin for the pain

I'm really tied of this and do not know what to do.

[deevine]

Trigeminal Neuralgia 5 years. GAMMA KNIFE Oct 26, 2023. 😢 my story a unique one ad the Dentist left an object in my jaw that caused my facial paralysis. I also suffered a CSF leak out my left nostril and had an endoscopy surgery to repair a Crack in my skull. I would love to share my story in hopes it begins healing and help others. 🙏

[adityanehwal]

Sir I had MVD for TN in 2022 before surgery i had no electrical shock bolts but after surgery the pain came back with electrical shocks with stiffness and fatigue

[vanessac]

What's causing the vascular compression? One would think that's postural/neck related

[gbell]

Does TN throb inside your nose as well