Pituitary Tumor | Yanir’s Story

[EarlWiener]

I was told that my pituitary adenoma was the size of a ping pong ball. They discovered it after having to go in for an MRI because I was suffering from severe migraines. A week after they found it I went in for an operation to remove 90% of it. The operation took about 5hrs. They couldn't remove everything because the adenoma was too close to some artery. They remove what was left through radiation therapy, 30 minute sessions for 4 weeks. This happened 15 years ago, my health is ok. I've been taking hormones every since the operation.
If you have been diagnosed with hypopiruitisim hang in there it's not the end of the world. Just prepare yourself for some hospital bills not covered by your medical aid. You'll also get through this. I'm 51 years old and still feeling strong, through the grace of God.

[terig]

Hi I listened to your story and mine is similar March 2016 I got my eyes checked because it seemed like I was looking in a tunnel and when I closed one eye this black blanket came and I could read horizontal lines on both eyes. I too found from a MRI a tumor pressing on my optic nerve. They operated right away up through my nose and removed the tumor on my pituitary gland. My eye site returned and the healing began. But right after I had no functioning thyroid, cortisol, estrogen. And I also became depressed and anxiety. So now I've went to tKing no meds. In 2016 totaling 5 meds now I had lost 25 lbs. and was weak. But I'm now getting stronger! I'm a 53 old female but there for awhile I felt 83 years old. I just wanted to tell you my story too!

[sarahmorley]

I have a pituitary tumour. Watching this video has really helped, thank you. Thank god you are feeling great now and healthy 🙏

[rickinseawa]

I too had a pituitary tumor. Unfortunately, due to the fact that we were poor, and seeking medical attention is a privilege when you're poor, my tumor went undiagnosed for 12 years. When I was 25 people were asking my family if I had Downs Syndrome due to the side effects the tumor had on my body. By the time I was 25, I had lost half of the vision in my left eye and a quarter of the vision in my right eye. I had no body hair, no sexual attraction to anyone, a severely compromised immune system, slept 16 hours a day, had an aversion to sunlight, an aversion to loud noise, and when I woke I would have constant pain running down the left side of my head. It all ended ok because for 35 years since then I have been blessed with a great life.. Best of luck.

[MensRestroom]

I’m 23 years old and just found out I have a pituitary tumor, after going to the er for severe migraines, I had a mri done in the hospital and they found a infarct lacunar or small stroke. I was then told I had to get another mri when they found the pituitary tumor. I’m kinda used to being told bad medical diagnoses as I had open heart surgery when I was 14 with other heart problems. But I’m hoping for the best about this tumor as I’m getting another mri soon.

[DragosDomnara]

I was getting tested for breast cancer and now I am getting tested for a tumor. Being only a 17-year-old male my doctor did not want to say anything to me until she was sure, she said not to stress now and if something does show up I still should not stress. All my levels are normal except my prolactin. she said my prolactin was EXTREMELY low and was trying to find a reason if I was doing drugs or drinking. I dont do that which at my age is considered embarrassing. Anyways I am extremely tired constantly and have migraines. I like to fast and my longest fast was 13 days, I took my supplements so I would be good during the fast. I just hope that that the fast is what's causing my prolactin levels to be so low. keep in mind I did this fast almost 5 months ago and I got my blood test done a month ago.

[Faith-iblb]

I had a pituitary tumor I was pregnant 24 year old, And the same day I start to lose my eye sight I had a eye appointment that I made couple of weeks ago. Also this was my First Time seeing a eye doctor, so eye doctor check my eyes she said your brain is bleeding or you have a tumor, so I rushed to the hospital I can still see a little bit, The doctor said thank god you came right in time because you would been blind . They did MRI and I had a pituitary tumor it went away on it own less then a year. I got thyroid and adrenal Insufficiency and thee doctor said” I was supposed to have Diabetes too but I don’t. Also the doctor said the pituitary tumor was to small to remove.

[my_sideproject]

I had pituitary tumor resection surgery in May 2024. I was very optimistic, but recently found out tumor is still there albeit not as large as pre-surgery, but still fairly large. I was deflated after the results, however, I am staying positiove and optimistic that this tumor shall have no more place in my body ever again. Thank you God for you healing me 100% fully and completely. AMEN!

[billyrocky]

My dear lord, my tumour was 6cm. Thank god I'm still here sfter 4 operations and a shunt fitted. What i went through for 2 whole year before they fave me a MRI scan was uncalled for. I could oflost my life if my sister did not find me when my body had shut down.
My medication I'm taking is as follows.
Hydrocortisone 10mg
Atorvastatin 20mg
Desmopressin 0.1
Levothyroxine 150 mg
Growth Hormone needle
If you feel your losing sight, unbelievable headaches, energy loss. Go see your doctor. But very important to have your eyes tested because they will know if something ain't right.
Nearly 7 years on and my tumour is 3cm. I also had Radiotherapy. Basically hoping for Radiotherapy to shrink my tumour.

[MusicalMachineEtc]

I am currently 28 weeks pregnant and my TSH and T4 are both low. I got a call from the doctor today saying he was referring me to endocrinology for secondary thyroidism caused by pituitary gland. Fingers crossed that mine isn't a tumor. If it is, then who knows when I'll be able to get it removed with the fact that I can't go under for brain surgery while carrying my little man. Can't find anything about anyone else who has experienced this during pregnancy and that's even more nerve wrecking and horrifying. Hope me and my baby boy are both going to be okay. 💖

[iliyabotev]

Thank you for this video, very empowering

[dimplesen]

I had some dramatic experience too
I am 21years female and started with left half of my left eye started having blue and red hues but I thought It was migraine 2 months later half left got blurry and it was strange because I couldn't read from half left and could read from half right and it was my medical entrance exam time so I couldn't go for check up untill my the exam day is over . So after my exam I went to an opthalmologist and he did some tests and said your eye is completely fine and vision is full and now this problem has something to do with with your cerebral cortex , so he told me to do some blood tests MRI of brain MRA of cerebral cortex CT scan of spine and Ultrasound of my neck ECG after that I went to neurosurgeon and he simply said just do MRI and when I was in MRI machine the operator came and said your doctor has changed your MRI plain to MRI contrast and injected something into my right arm and my brother was siting outside they told him it was some kind of ulcer and when I come out of MRI room my brother was scared so I asked him what happened he said it's ulcer I was scared too because ulcers in brain can rupture anytime so after the report come we went to our neurosurgeon and he said please don't be scared it's a tumor and we have to remove it and your vision is getting compromised at this time was vision was only 64% in both eyes and so this day was Thursday and doc said get admitted on Saturday and your surgery will be on Monday . I did what they said went under Transphenoidal Surgery and was in ICU for 5 days after that in daycare room for another 5 days and it's been 27 days since my surgery and now the situation is I am recovering very well from surgery but the tumour biopsy shows it was Granulomatous hypophysitis and specially tubular hypophysitis so I am also on ATT right now .

[johnsway]

Same with me..my pituitary gland expand as per brain mri result.. my left eye was blurred also half of my vision in right eye..

[JimTimson]

I was on way to see eye doctor and closed my one eye at a stop light and noticed I could only read half the license plate of car in front.Switched eyes and same with other eye but could read the other side. Mentioned that to optometrist and within a week had results after MRI. Size of golf ball. All good now. No pain quick recovery. Hope this helps

[billyrocky]

Since 2014 i still have a pituitary tumour. I'm not sure what your size was, but mine was 6cm. I've had 2 operations on my tumour and 2 operations on my shunt. And finally Radiotherapy. Can no longer drive.
I take
Thyroxine
hydrocortisone
Desmopressin
Growth hormone needle
Testosterone gel
And Atorvastatin.

Life goes on.

[andykrose]

I just had my surgery a month ago. I had the same issue with my left eye losing sight, my peripheral vision was hugely decreased. MRI showed the tumour the size of my eye socket.
A month later and my sight is improving, the headaches are gone . Hormones still a bit wonky but getting there.

[Mystery-Moon]

I’m at an endocrinologist for low testosterone.
He was talking about doing a mri if my blood levels are off.
Can someone tell me what values are off with a pituitary tumor.
My LH and FHS are probably low because of trt and prolactin has always been normal in previous tests.

[adunzoroq]

Hey I have one too, I'm 33, and tumor is 3 cm but it's pressing on my optic nerves, I lost 60% of my peripheral vision in left eye and 50% in the right eye, I'm seeing through prisms and unable to read numbers as they merge, I've been living in constant stress as all the docs and eye 'specialists' were telling me I'm making this up. Until I ended in the ER. I've had visual issues for 7 months now and only hoping to recover my eyesight but I understand it can be so late into the tumor the optic nerve might be damaged permanently. 🙁 I've started seeing a black ball when i rub my eyes it's always on the opposite of where I press, I wonder can I somehow see the thing lol.
Other symptoms I have is complete lack of sexdrive, irritability, feeling forever tired, sleepy. Brittle nails, hairless arms, my head aches were mild to none until around a month ago, now its awful. A lot of tension in my eyes.. Like they are ready to pop.
I'm scechuled a consultation with the neurosurgeon this week and a surgery hopefully next,
❤️Good luck everyone suffering, I hope you are on the way to full recovery ❤️

[marylagrange]

I have hyperprolactinemia but a tumor didn't show up on the MRI luckily. My levels were 52/1100 and I've had a lot of the symptoms for the past few years that match up (weight gain, excessive sleepiness during the day, low libido (this is more recent), short/lighter periods for the last 3 years (I am 29), and then just last month my period stopped completely. I always thought I had a thyroid issue but aside from one time all the levels have been normal. Right when it stopped, I just got my diagnosis from the lab result from OBGYN and the doctor has started me on cabergoline. I am hoping it restores my menstrual cycle I know it's helping a bit already but I won't know until that comes back. I also have issues swallowing for the last 3 years too so if they told me that I had a brain tumor that wouldn't surprise me at this point. Luckily it isn't big enough if it is there and if so then it's probably benign. I also have had to take anti seizure medication for seizures the last 13 years but have been in remission since

[donnacabot]

Yrs ago I found out I had tumours in my throat. Last year I found out I have a mass in my right boob. This year I find out I have a brain tumor. Shitty luck.