🏥 PICC Line Placement & Starting TPN: IV Nutrition 💉 (5/2/18)

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[jot]

Hey Jaquie! Just to ease your mind, when I got my PICC pulled out, I literally turned my head so I wouldn't have to see, but then she [the nurse] was like "ALL DONE! :)" and I turned back and it was out. The only thing I felt was her pressing some cotton to the hole. No pain, no "spaghetti being pulled out" feeling. It was quick and easy!
My sister was more freaked out than me because she watched it being pulled out. She said it was whipped out super fast, and what freaked her out was that it looked like a needle. I think it was just because the tube is a bit stiff.
Anyway, I'm catching up on your adventure right now, so you're probably getting loads of PICC reassurance already. Hope you're getting out of hospital soon! All the best from the UK xx

[nancybennett]

When my PICC was pulled out of my neck it felt funny, but it didn't hurt. So glad you're getting some nutrition! God Bless.

[GIguy]

Since I was 20, I have been battling Crohn’s disease for 30 years now, I’ve had and total 17 PICC lines over the years. But with everyone, I was never nervous and I never really felt anything, probably because I was so doped up, or because I’ve already had 37 of the most brutal surgery as you can imagine, all I know is that getting a new line meant nutrition and strength, so it was always a positive thing for me. I’ve never had to go on it permanently, but come this January, that’s about to change, and I’m about to have to start TPN for life, as I’m down to less than 5% off my entire G.I. tract, and my body cannot absorb any more nutrients, and I’m losing weight every single day since my last surgery November 16. I’m at my wits end, I’m nearly 6 feet tall and I’m down to 140 pounds, I’ve never been that light in my life, and I keep losing, so this line is going to be my savior. Between the line and Jesus, is the only two things that I’m going to keep me on this earth, because anything Short of that, and I will die. I’ve been dead ones and nearly twice more over the past 30 years, right now my life hangs in the balance, and I’ve given up for the first time ever because no matter what I do, I have nothing but the city water pouring out of my stoma, about 4 to 5 L a day, no matter how much I try to eat or drink, I’m constantly do you hydrated, and lose at least 1 pound each day. To those of you who are healthy, do you have absolutely no idea how lucky you really are, because I would give anything to feel healthy just for one day! This disease has completely destroyed my life, my finances, and my future. At the age of 46 I was forced to retire and go on long term disability, I just turned 50 but I don’t see myself living past 51, and at this point I don’t want to if this is all that life is going to offer. My last hope is this TPN, because if that doesn’t work, I’m as good as dead, which really pisses me off because I fought so hard for the last 30 years to stay alive, especially given that all the treatments have given me 11 other chronic illnesses, not to mention having to endure three rounds of intestinal cancer that came along shortly after my diagnosis of Crohn’s disease. Frankly I’m surprised I’m still alive, and I could live without money, which I do already, I’ve used every penny I ever had just stay alive during those times the insurance company would cut me off for no reason, I could even live with all the other diseases, but I cannot live like this, constantly losing weight and having no energy to do or go anywhere. I know I’m a total stranger, my real first name is Eric, if you’re Religious in anyway, please, say a prayer for me, I’m usually never this forward, but frankly desperate times call for desperate measures and I need all the help I can get. Thanks for the video, and I pray that The TPN works well for you, please keep us posted on how you’re doing, and if I’m still alive I’ll try to do the same.

[MyTundra]

I just had my PICC line done on 11/28/18. My Gastroparesis got to the point I was not tolerating sufficient feed rate for nutrition, or max of 15 ml/hr, without HORRIBLE pain. Now, they don’t know why, but the PICC site is causing me some throbbing pain. Mine was done at bedside, and was less painful initially even after the Lidocaine wore off. They said this was normal, but would order an x-ray. Now, because of a backlog in the hospital, they may want me to discharge and come back if I have symptoms. I am kind of having symptoms now, and don’t like the whole “coming back” idea with issues. I don’t like being in the hospital, and I’ve been in the hospital currently since the 17th of November. It is the 4th of December. SO frustrating.

[sueschultz]

Praying for your speedy recovery Jacquie!

[penelopepolinsneemeyer]

Hi sweetie! I hope the PICC line is working well today and that the TPN is giving you some much needed energy

[liamodonovan]

Your looking a bit livelier in this video I hope the treatment is working and you will be back home soon love you Jacquie sweetheart

[willowoahh]

Hi Jaquie! I'm on a diet and I'm not eating as much and right now I feel awful! I feel sick but not to hungry and I'm thirsty but whenever I drink I feel even worse. Seeing your videos motivates me so much seeing how you deal with your struggles. You are awesome! Stay strong!

[brendabaum]

After your last video, I prayed the procedure would go well for you. I’m so glad this is over! We all care about you and hopefully this will give your body the fuel it needs to fight! 😀😀😀😀😀

[kellycannon]

Also so crazy that they give sedation for a PICC! We sure don’t! And i didn’t have any! It’s a super quick procedure

[winstoncollier]

We do PICC lines at bedside all the time - and thank the lucky stars you dont need an IJ or any of those neck central lines. Good news: you can deaccess your port, which will help your skin around that area. Plus the RN can draw labs from a PICC line if you get orders. TPN is OK, but given your history, be sure you get your anti-nausea meds before they hang that white bag of lipids, lots of patients get initial nausea at the start of infusion for the first 30 minutes or so.

[amberyingling]

So glad the picc is placed and working! I've had 7 picc lines which has left me only one vein that can be accessed for PICC. The last picc I had the IR Dr could hardly thread it through thanks to all the scar tissue from previous piccs. On the study they saw that my subclavian has actually rerouted to smaller vessels. Obviously PICCS can be both helpful and necessary for treatment, just unfortunate when they have to be repeatly placed. The IR Dr who did my study recommended that at my age (26) consideration of future access be considered before central lines are pulled to prevent going from limited, to no access. Thankfully I have a port now for my infusions, and my TF are working. I KNOW how incredibly frustrating it is to have to go on TPN because other treatments aren't working. Praying this is a short term problem for you, that the FT infection resolves soon, and you can quickly bounce back afterward!

[amandaz]

Are you all right? There haven’t been any vlog posts and you didn’t say you were taking a break.

[slowedsongsaremyreligion]

I hope you feel better soon! I am 13 years old with suspected pots and many other things so I am having a bad flare up, MY WORST... so i have been admitted to the hospital for the first time ever so thank you for the support and inspiration

[Finder]

Sending positive prayers for you and Judd. You inspire me.

[billjacobsen]

Hi, Jaquie
I’m sorry that you’re in isolation. It can be rough and a little disheartening. As part of the protocol, don’t visitors and medical personnel need to be in special over-garments?
In my experience, people who come into the room would wear disposable gowns, gloves, and masks. There would be no direct contact so as to prevent the possible spread of infection. Also, is not Harlow capable of becoming a carrier?
I’m going by my own experiences and what I had to go through.
When the PICC line comes out it is an easy process. They just pull it out and slap a bandage on your arm. One less thing to worry about 👍!

[kellycannon]

Just curious what antibiotics you are on? I’m a nurse so I love hearing about that stuff!

[marjoleinvaningen]

I have a holter-heart exam tomorrow, and I'm pretty nervous because I'm always reacting to the sticky part on the electrodes...

Also, why do you need supervision to deacces (I have no idea if that's correctly spelled), since you can do it on your own?

[joansmith]

Since you don't have a vlog up today. Wanted to wish Judd a "Happy May the 4th be with him day " :D

[jan]

I feel terrible about this long hospitalization. You are a very brave and patient person. Hugs for you!