I Broke the Rules! | Livestream

Going live again for August! I really enjoyed going live with you all last month, so I hope you'll be able to make it to this one as well. I'll try to share any updates I have with you all and hopefully will be feeling well enough to hold out for an hour or so :)

Timestamps:
00:00-02:07 Greetings/Addressing My Face
02:07-02:54 UK Gov Asking Autistics to Sign DNRs
02:54-03:30 Zits & Skin Picking
03:30-03:48 Silly Super Chat
03:48-04:23 AUsome Chloe Channel
04:23-05:57 Time Zone Differences/Locations
05:57-06:30 Legal Action Against JRC
06:30-07:08 Revisiting Locations Convo
07:08-08:06 Appointments & 'Rona
08:06-08:28 Dylan Freeman
08:28-09:00 Kind of Lawyer Needed
09:00-10:12 Viewer Updates/Random Chat
10:12-11:17 Husband Recovery Update
11:17-12:54 Mask Merch Mention
12:54-19:10 Online Communities & Different Kinds of Stims
19:10-25:16 Backgrounds Books, Fun Words/Sounds, & FB Page
25:16-25:55 Yo Samdy Sam's Upcoming Stream
25:55-26:49 Being Compared to Autistic TV Characters
26:49-27:31 Random Chat Convo
27:31-30:42 Shy When Mentioning Autism?
30:42-31:22 EvErYonE iS a LitTle AuTiStiC
31:22-32:28 One-Sided Convos
32:28-36:37 Undiagnosed w/ Unsupportive Family
36:37-38:12 Alex Carson, Dr. Pepper & Random Chat
38:12-39:46 Uncertainty About Being Autistic
39:46-43:18 Hyper, Books, & Self-Acceptance +
43:18-43:41 Selective Mutism
43:41-55:13 Autism Diagnosis Access/Convo & "True Autism"
55:13-58:12 People Who Don't Understand Struggles
58:12-01:05:08 Masking w/ Masks & Stream Exhaustion
01:05:08-01:06:05 To My 16 Yr Old Self
01:06:05-01:12:02 'Rona & Autism Dx Pursuance
01:12:02-01:13:28 Write a Book?
01:13:28-01:17:07 More on Dx & ABA/Behaviorism
01:17:07-01:18:35 Autism vs Personality
01:18:35-01:22:17 Rejecting Autism Diagnosis
01:22:17-01:24:20 Random Chat Convo
01:24:20-01:26:50 Sleep Issues & Discovering Autism +
01:26:50-01:29:12 Autism Life Expectancy & Age/Numbers
01:29:12-01:31:02 Stims During Sleep & Breaking Rules w/ Friend
01:31:02-01:32:46 Concept of Mortality
01:32:46-01:34:29 Wrapping Up & Goodbyes

[seanriddle]

In an article by Forbes posted in July of this year, "In the U.S., several states including Tennessee, Washington, Kansas Pennsylvania and New York have issued protocols deprioritizing the treatment of disabled people in the event of scarce medical resources. 
Additionally,  Alabama was compelled in April by the Office for Civil Rights to abandon its crisis management policy of “denying ventilator services to individuals based on the presence of intellectual disabilities, including ‘profound mental retardation’ and ‘moderate to severe dementia.”
I found this out as I was looking to read more about the uk dnr ruling.

[MartKart]

NHS is public in the UK, it's only free for UK citizens and non UK citizens have to pay. Some people do have to pay for prescriptions, unless your a certain age, or disability, people with jobs might have to pay for them.

[seanriddle]

If a book does get written, I think that it should be in part a review of your videos and the topics you did while showing your growth with the diagnosis. Utilize your parents' memories of your childhood experience so people can read about that too. The book would then be a bit of a biography then but an amazing one that I look forward to reading when it gets published. Thanks for all the vids and info you've shared.

[UnapologeticFranchfries]

I miss your Live, I’m so bummed ☹️ I will try to make it next time! I am OCD pimple popper too! So I relate! Those pimple got to be pop yo! Lol 😅 glad you are doing better and not afraid of showing yourself natural 😉

[Xankillr]

Conversations with self - Thanks for mentioning I thought I was the only one who did that frequently (assuming NTs do too but not very often). Often I feel like I have far more conversations with myself than I have with other people. Mostly it's in my head so at least I don't get stares.

[endorolfgreenwolf]

For changing voice, yes. Especially during Halloween, one Halloween I used the stitch voice at work. I was dressed as stitch who was dressing up as a human 7-11 worker.

[Yk-mmxt]

The comments on the stream are very helpful. Thanks.

[sarinalight]

I do change my voice to entertain myself & others yet I’m not always aware? To some individuals I can come across as offending or making fun of them😒. This World is exhausting at times.I just want people to Smile💛

[robertjohnburton]

Hello, nice to know you. Australia has Medicare which provides me with support; however, I am struggling with growing older. I am getting so moody, wow! Stay safe everyone. Use Tea Tree oil to fix difficult skin.

[Xankillr]

I had watched a few videos before (don't remember which channel) talking about sleep issues and ASD. I do have a bunch of sleep issues but didn't really know their medical terms - except Restless Leg Syndrome which is the only one I've looked up before. I just searched specifically for Sleep Disorders and Autism and came across a paper available on NCBI. I sure am glad I looked it up because now I at least have names for other stuff that I experience. Note that these are not exclusive to ASD.
1. Restless Leg Syndrome with periodic limb movements in sleep. Could possibly be Periodic Limb Movement Disorder but I'm not sure.
2. Rhythmic Movement Disorder.
3. Insomnia (too difficult to shut down mind- been like this since childhood)

[Shaun]

I interact/converse a lot how you do when I’m happy and not trying to mask my “quirks” lol. I’m only self diagnosed for now but I have that same kind of dynamic with my dad from my perspective he def checks many “boxes” but I’m obviously not a doc haha. nearly his whole family is if not most of it... Ummm... well they are not typical so they all think they are normal in a way lol... my dad has been diagnosed with depression but there’s definitely more to it than just that. My nephew is diagnosed ASD that’s part of why I started looking into ASD. All 4 of my dads siblings and parents and his grandfather(my great grandfather who was probably the person I was closest to and the most relatable in my life as a child) all have potential signs of it. Sing stim yes definitely

[seanriddle]

I had the same experience with my regular dr referring me to a colleague who can diagnose me.

[elaynelewis]

The only thing that is wrong with being autistic is that we don't live in a state of our own .
We are wonderful and are weighed down by criticism from the neurotypicals.

[ceridwentaliesin]

@Chris Lavigne, you want a disability rights lawyer. I hope you have good help recovering from JRC. I'm sorry you went through that.

[Xankillr]

"Why does it matter?" - this question is so annoying. And so difficult to answer. I find that at least personally I have a very strong *need* to know and understand the reasons behind things. And I also find labels super useful - tbh I don't understand why people dismiss them so easily. Labels are never "just labels" IMO.
All that said - I don't think I have ever really convincingly answered that question when asked by mental health professionals. :/

[garyfrancis]

It's 3:30am U.K when I leave this comment.

My comment on the chat.

It has turn into my own 3 part series on the chat about my fear of dying.
And sadly I was brought in a atheist family.

So I been thinking deeply about it the 4 months since UK lockdown.

Why are we here?
Why am I me?

So on your stream asking if life a miracle.
On Indy Andy first Tues stream 2 weeks ago.
I ask him if he wanted to live forever?
Then now if with atheist not believe in anything after death apart

So I don't what to believe it but it petrifying to say there was billion years before I was born.
If I live 80/90 and go back to nothingness again for enturnity after I die.

Then I just have to be O.K with that.
The miracle of life as a end point.

If for NT who love life the party has to end someday.

So I certain my fear of dying will still be as bad even if I live another 55 years.

But this pandemic I hope is change people have for good.
It's normal for human to fear death.
As Woody Allen says "I don't fear death, I just don't want to be there when it happens".

So I not scared of talking about my fear of dying.
Because the though of dying is stopping me from living.

It become pure O OCD, talking about openly helps.
Just not thinking about it is impossible for autism brains.
Can't get a though and put it to back of our minds that NT do.

With religion I'm open minded even with my atheist up bringing.

Believing in Heaven or reincarnations that's fine.
I really want to believe in heaven.
It would Defiently control my anxiety if I fully did.

I don't want to have a comment argument.
About atheism and religion.

I have listen to Mormons about this topic.
So I respect everyone belief.

[melissad]

40 ads on this video. I know it's not your fault. YouTube is just REALLY getting greedy during this pandemic when so many people are watching more videos while stuck at home I guess. But...40 ads!!!! Holy

Hey I asked you a question in the comments about a month ago and you responded, but I don't think you saw my reply. I'll post what we both said here, and I'm hoping you can reply again? I'd really like your help. Thanks :)

*Me* : Hey I have an important question and I think this is a good place to ask it.
I was sexually assaulted by an Autistic person in college (last year), and when I reported him, my college said that they can't hold him accountable because he didn't understand my refusal to his touching/advances (apparently saying no over 8 times and walking away isn't enough). He grabbed me really hard and tried to back me into a corner and hold me down. He begged me to kiss him over and over and over. 
I really feel like I was done a disservice. I think regardless of what issues you may have, crimes and assault should never be okay or excused.

What should I think/do?? Thanks

*You* : I'm so sorry to hear this happened to you. If someone can have the presence of mind to know what they are doing (begging for kiss) then imo, they can be held accountable for their actions. College didnt have a right to refuse to report/do anything.

*Me* :Thanks. They refused to do anything and it got to the point where they were they almost seemed annoyed that I was not okay with his actions. I even got my mother involved at the end because I didn’t know what to do and they weren’t listening. I’ve graduated now, but what do you think I should do with this?

Please help? :)