Living Well with Young Onset Parkinson's Disease

Young Onset Parkinson’s disease (YOPD) occurs in people younger than 50 years of age and affects about four percent of the one million people with PD in the United States. This program will provide insights into life with YOPD from the perspectives of people living with the disease. Panelists will discuss the unique circumstances specific to a YOPD diagnosis, the stigma often associated with PD, and coping strategies for living well.

Panelists:
Anna Grill, person living with YOPD
John Cox, Husband, Father and Paramedic/Firefighter living with YOPD
Liz Brouillard, Mother, Social Worker, person living with YOPD
Paul Cluff, person living with YOPD

[paulbarnwell]

I’m living in Ireland and newly diagnosed. The comparatives with the panel experience in the USA are remarkable. Excellent, highly informative and useful contribution from the panel and chairs. Very well done. Deserves more positive commentary

[Carol-kfqp]

Thank you to all of you that shared your experiences. Both my heart and my brain were wo appreciative of hearing your insights. Thank you all so very much!

[CF-wnce]

Thanks so much for sharing this. I am struggling to find ANYONE like me. After decades of gaslighting I feel so alone.

[marthasway]

Eureka! I am grateful for the wisdom of this group.

[fullermoments]

I agree with all that has been said....As a 2 time cancer survivor I can relate to the impact of a life changing illness.
My daughter was diagnosed at 34 with 2 kids and husband. My mom at age 75 also had Parkinsons and I was her caregiver when my daughter was diagnosed. I felt totally lost to help her while I was caring for my mom. My daughter is now 37 and my mom has sinced passed at 84. I am hopeful after seeibg this that my daughter and so many others will have a YOUNG ONSET CONMUNITY to help them.

[antondelacruz]

Seriously they look normal despite having been sick for years.

[KMx]

My path has been eerily similar to Paul's. Same line of work. Same symptoms, same wrong diagnosis (same fingers, even) only I haven't had disc buldge surgery yet...my consult with neurosurgery is coming up, though, and I do have cervical disc buldges being questioned as the source of my issues. Now, I'm not so sure.

[maxinebentley]

thank you - inspired me to motivate my husband xx