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#chronicillness #lupus #chronicpain #fibromyalgia #potssyndrome #ehlerdanlossyndrome
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✨Here’s a little about me:
👉 I have been on this journey for several years. Although it took me a year to start realizing this was beyond my scope of care. I always hated Doctors, hospitals, & meds. When I finally sought help it took too long to get proper treatments and I went into a huge unforgiving flare that lasted at least two years.
🌟My formal diagnosis is Ehlers Danlos Syndrome (hEDS) w an overlay of Lupus. I also have the cormorbidies like PoTs, IBS, Fibro, Anxiety, and suspected MCAS (Phew, that was a mouthful).
To sum me up: ✨
🧿 I am cautiously optimistic, refusing to give in, but realistic in my approach. While documenting my journey💜
✨Let’s be friends!!
🧿🤍
#selflovejourney
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#chronicillness #chronicpain #chronicallyill #invisibledisability #invisibleillness #spoonie #spoonielife #lupus #lupuswarrior #ehlersdanlossyndrome #edsawareness #ehlersdanlos #jointhypermobilitysyndrome #fibromyalgia #fibro #potssyndrome #mcas #motivation #disabled #keepgoing #pots #mentalhealthmatters #mentalhealth #anxiety #autoimmunedisease #autoimmunewarrior #inspiration #lupusawareness #depression #vlog #vlogmas
👉 I have been on this journey for several years. Although it took me a year to start realizing this was beyond my scope of care. I always hated Doctors, hospitals, & meds. When I finally sought help it took too long to get proper treatments and I went into a huge unforgiving flare that lasted at least two years.
🌟My formal diagnosis is Ehlers Danlos Syndrome (hEDS) w an overlay of Lupus. I also have the cormorbidies like PoTs, IBS, Fibro, Anxiety, and suspected MCAS (Phew, that was a mouthful).
To sum me up: ✨
🧿 I am cautiously optimistic, refusing to give in, but realistic in my approach. While documenting my journey💜
✨Let’s be friends!!
🧿🤍
#selflovejourney
.
.
.
#chronicillness #chronicpain #chronicallyill #invisibledisability #invisibleillness #spoonie #spoonielife #lupus #lupuswarrior #ehlersdanlossyndrome #edsawareness #ehlersdanlos #jointhypermobilitysyndrome #fibromyalgia #fibro #potssyndrome #mcas #motivation #disabled #keepgoing #pots #mentalhealthmatters #mentalhealth #anxiety #autoimmunedisease #autoimmunewarrior #inspiration #lupusawareness #depression #vlog #vlogmas