Stoneman Syndrome | Disease Awareness

[Cja]

I have always felt that Stoneman‘s disease is one of the most horrific diseases there is. How I wish there was a cure. As bad as it is, I am often struck by how those who suffer from it do so with such courage. I think of them sometimes when I am tempted to whine about the small burdens in my life.

[shawnaarnold]

Way back in the 90s, i watched a show on a little boy about 6ish that had this, and he was getting to the point he couldn't ride his bike anymore... i still think of him 😢

[dcalfine]

ive learned about FOP (fibrodysplasia ossificans progressiva) which is prettu much the same thing but idk if its exactly the same as stone mans syndrome just with a differeny name 🤷🏻 but apparently whenever someone with fop gets injured the body tries to fix it like it would fix a broken bone by regenerating more bone, only it does that for muscles and everything💀 which is why doctors cant even do anything to slow it because if they cut away the extra bone it will just „heal“ by growing back

[Ihaveaviciouscat]

That’s cool!! Thanks for teaching me something new Lucas!

[sleepoverfrightsofficial]

My father has this. It's really hard for him. In his spine.

[southernbelladonna]

Wow your face is looking better every time!!!❤❤❤❤

[UrsTruely-Valentine]

I think I accidentally gave my oc this condition, except he turns into a literal satue.

[ItscompliKATEd]

Wow u are looking great! Congratulations!

[onewotldgovernmentonlywhen]

Hello, I saw a documentary of a woman who had a dead baby inside of her for 40 years and once it was removed in surgery it was completely calcificated. I think the body does that to protect it something or it is confused like immune system. They have to find out what the body is fighting.

[wisepati]

It’s actually called FOP. I don’t think the people with the disease appreciate it being given a nickname.

[Knightmare]

There is a way called CRISPR treatment when granted it's new tech but it can repair damage dna.

[vampirechick]

I don't think i have this but the cartilage in my hip socket had turned to bone at some point and when i fell at work in December it shattered the hardened cartilage and turns out all the pain i was in was from bone fragments being ground between the ball joint and hip socket. Had extensive surgery in july and have cartilage from a cadaver in my hip now

[mr.scrubber]

Good thing you doing have it, handsome. We love you.

[bentonrector]

It probably inspired the story of Medusa, some dude had this disease, had a bad bitch, broke off the relationship and he turned to stone😂

[JerhyelValerio-fown]

Actually my cousin has it and is still alive for 12 years

[GooseGorillaVr]

The skeleton took minor to a whole new level 💀💀💀💀💀💀💀

[bromoboy]

Snowman Syndrome : hold my beer

Disney Syndrome/ Olaf Syndrome : i'm everywhere

Sleepy Joe Syndrome : Kamala Harris



😂😂😂😂😂😂

[Put_Shrk]

I done have this but I have a different super sucky rare gene! That gene being (drum roll please)
A rare stomach cancer gene!
I am super likely to have cancer and not only stomach cancer but my family also has a history with breast cancer (I think bc my mom is at risk and she also had stomach cancer)

[Decklyn-vojj]

I thought the bump on your face was on the other side in one of your other videos 🤨

[pokemonaddict]

Absolutely no hate this is a new channel for me but what’s wrong with your cheek