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What is SMA? | August is SMA Awareness Month

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August is Spinal Muscular Atrophy (SMA) Awareness Month, and we have a whole series planned for y’all! We will be posting videos throughout August covering different SMA topics. Here’s what we’ll be sharing:
1. What is SMA? A general overview plus some specifics on Randi-Lynn’s SMA.
2. What causes SMA? Come get bio-nerdy with us! We’ll go over the details that make SMA what it is.
3. What are the treatments for SMA? We’ll go over the options that are currently available as well as those on the horizon.
4. And lastly, a story time. We’ll tell you about Randi-Lynn’s treatment journey.
We are cousins who love to travel, but the world is not always as welcoming to varied abilities as it should be. Here we will be sharing with you our adventures and some of the ways we have learned to make the not-so-accessible accessible. It’s not always easy but where there’s a will there is (usually) a way!
JOIN US ON YOUR FAVORITE PLATFORM
MUSIC/SOUNDS
✨Dress shoe jog on concrete from YouTube’s audio library
CITATIONS
1. What is SMA? A general overview plus some specifics on Randi-Lynn’s SMA.
2. What causes SMA? Come get bio-nerdy with us! We’ll go over the details that make SMA what it is.
3. What are the treatments for SMA? We’ll go over the options that are currently available as well as those on the horizon.
4. And lastly, a story time. We’ll tell you about Randi-Lynn’s treatment journey.
We are cousins who love to travel, but the world is not always as welcoming to varied abilities as it should be. Here we will be sharing with you our adventures and some of the ways we have learned to make the not-so-accessible accessible. It’s not always easy but where there’s a will there is (usually) a way!
JOIN US ON YOUR FAVORITE PLATFORM
MUSIC/SOUNDS
✨Dress shoe jog on concrete from YouTube’s audio library
CITATIONS
2023 Cure SMA Walk for Graham This Saturday, Aug 5
Stepping Up For SMA - Webinar 1 (7 August 2021)
What is SMA?
Stepping Up For SMA - Webinar 2 (14 August 2021)
Spinal Muscular Atrophy - Understanding SMA and the Role of Genetic Testing
Scholar Rock - Spinal Muscular Atrophy (SMA) Trials
Best #AquaticTherapy Equipment for SMA ✨ #Spinal #Muscular #Atrophy #AwarenessMonth #SMA
Final Thoughts on Treating SMA
Living with SMA: The Next Step Forward
Spinal Muscular Atrophy (SMA)
Clinical Trials for Risdiplam for SMA
(Australia) Biogen ANZ Trailblazer Challenge for adults living with SMA
Living with SMA: Kevan’s Story
Spinal Muscular Atrophy (SMA) Awareness - Patient Treated with Evrysdi
Cure SMA's Community Webinar on the FDA Approval of Evrysdi risdiplam
(PART 3) SMA Life Through the Ages - Living With SMA PODCAST #19
Living with SMA: Nathan's Story
The changing therapeutic landscape of SMA
Lyza Weisman - SMA Awareness Month 'Sharing' Video 8.16.2017
Spinal Muscular Atrophy (SMA) Is Added to the Federal Recommended Uniform Screening Panel
Big Ideas Yield Transformative Results for SMA Patients
Dany Sun - SMA Awareness Month 'Sharing' Video 8.9.2017
#SMA aquatic therapy: enhancing strength, mobility, and quality of life #Spinal #Muscular #Atrophy
Summit of Strength Webinar Series: Chari-SMA-tic Independence
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