Kathy O's Victory Over Vasculitis

Kathy,, a Vasculitis Foundation Victory Over Vasculitis ambassador, shares her personal victory over vasculitis.

[kathyolevsky]

Hi Chamila - it is always best to talk to your Dr, but the information I have gotten is that being active, when you feel up to it, is actually good for you. Now, it may be different, based on what type of vasculitis you have. For me, I was in and out of treatment for 6 years after diagnosis. Then I had a 9 year remission. In that time, I walked, hiked, swam, bicycled and renewed my skills in my profession as a Karate Instructor. I was not very active during the 6 years of treatment, in fact sometimes I couldn't walk to the mailbox. But, I love to be active, so when I started to become healthy again, I started to become active, with gardening, walking and going to the grocery store.

[kathyolevsky]

Hi Julie! I have found that walking helps me feel better. Some days I walk around the block. Some days I walk 2 miles. I just do what I feel I can manage.

[Dreaminclouds]

I am 26 and currently in one of the countries best hospitals. After being misdiagnosed for 2 months, I am finally finding out I have a type of vasculitis. This gives me hope❤

[chamilawijesinghe]

Hi, can you please explain how it helps vasculitis by walking? Wouldnt we get flares ?

[Head-ScratchingEscapades]

Hi Kathy, I have ANCA Vasculitis and RA. Its hard for me to walk sometimes😢

[TheSubpremeState]

GPA and poor understanding by others ... discrimination of sorts led me to take more and more painkillers. I stopped heroin (its cheap and 4or5x more powerful when injected) therefore you need less but i have to take tramadol to get anything done and lyrica. The fatigue is soul destroying

[juliegill]

Awesome! Do you find walking a lot causes flares?