'What is going on?' | Angelina's first Lafora Disease symptoms | Fighting the Rare

Niki shares some of Ange's first Lafora Disease symptoms in this clip from the "Fighting the Rare" trailer. She was shocked to learn of her daughter's rare disease. We know it's a sentiment many families can relate to while searching for a diagnosis.

This documentary by Dr. Jordi Duran, Dr. Jaume Duran, and César Valdivia provides a glimpse into Lafora disease - family experiences, researcher testimonies, and the work to find treatments, and ultimately, a cure. We can't wait for it to release on June 26 and shine a light on this rare disease.

(c) Copyright Chelsea's Hope Lafora Children Research Fund