LETS TALK ABOUT POTS! | Postural Orthostatic Tachycardia Syndrome | What is Dysautonomia??

Hello my friends! Today I’d like to share with you all things POTS (Postural Orthostatic Tachycardia Syndrome). We are talking about treatment, symptoms, how to get diagnosed, what your life outlook is, how to live with it and how to know if you have it. I hope you enjoy this! If you have POTS let me know down below!

I am a stay at home mama to a sweet baby girl, and wife to an amazing husband. I also have several chronic illnesses (see below). I am passionate about sharing my story to help those suffering like I do. I have a degree in health education and I am certified in nutrition, chronic disease, and health promotion.


For more info on my chronic illnesses check out the links below!

[ChibiChoChan]

I just wanted to say thank you so so much for posting your videos about POTS. I never would have known about it and researched about it if I hadn't found your videos. I absolutely think that this is what I've been struggling with and I am planning on talking to my doctor about it at my next appointment.

[AbbiWinslow]

I love that you broke it down word by word! You explained it so well!

[debbyhathcock]

Thank you so much for sharing. I don't know that I have p o t s but I do know I have chronic illness and it helps a great deal just to hear somebody else share their journey honestly...

[xEmmy]

14:40 as someone on the milder end (and undiagnosed), I'd say that the issue is less dizziness (though that does happen) and more just exhaustion from how much energy it consumes.

[tammytarry]

I have 9 of the symptoms you described…this is making a lot of sense

[SusieW-kuub]

Aimee, I have Fibromyalgia & CFS, and I think I have POTS too. Your videos are really helpful. I’m going to see my doctor next month to talk to him about POTS. Thank you!

[jessicalingo]

Ive had pots symptoms since 2010. Unfortunately due to lufe circumstances i havent been able to get correctly diagnosed. Since 2018 i had it worse and in 2019 i was diagnosed with psychogenic non epileptic seizures. I woyld stand up or get really high hr and get so bad that i would start to decline. It would be brain fog then fatigue with lightheadedness then my body would shut down. I couldnt speak or move when i was in these catatonic state. About a year ago i saw a service animal video with infor about pots and it caught my attention. Im now trying to get on the path to diagnosis. I just got some compression socks that have made things a lot better with my fatigue (my most cripling symptom) and this is the first day that ive had enough energy to actually do things in quite some time. I did do a pmttt for some friends and it jumped at least 30bpm. Im waiting for the cardiologist appointment. Im curios about what it feels like when a pots person faints or psudo faints (my term for the presyncope) i think ive been having those episides without realizing it

[DoorDashers]

I have multiple sclerosis also unbelievable

[sweetjessiemarie]

Hi Aimee, this is so interesting. So much feels like it makes sense now for me but then there's that thing about getting a diagnosis and the fear of it not being my issue. We live rural and all the doctors I've gone to so far, coming in with my long scroll like lists just think I am extra sensitive and am making something out of nothing, or so it feels. Tests come back fine except for celiac and Graves. How do you approach your doctor so that they will listen and what kind of Dr do you actually go to for this?

[noodlesoopersoop]

Thanks for this video, I’ve been experiencing POTS like symptoms for a while now and after a lot of confusion and frustration I’ve finally found something that seems to fit with what’s going on with me. I’m nervous to look into it because I’m afraid of not being taken seriously, but asking my doctor about POTS if I can work up the courage to do it, seems like it could be a promising next step :)

[amberblair]

Thank you Aimee, genuinely helpful. :)

[steviestyles]

Hey! Love your videos. Can you make a video for family/friends of people who have POTS? To let them know what it is, what we feel and the patience/understanding they may need to have with us?

[amandaneuser]

Hi. It took over 6 years to diagnose my Pots. Recently diagnosed 4 weeks ago. Having the Hardest time trying to accept it and my anxiety is so high from it I feel like I just wanna lay around in bed all day and do nothing I don't know how I can convince myself to work out so I can feel better. Are you still doing the life coaching thing? I see that you're about to have a baby soon and I'm not sure if I should sign up

[DiariesofaDisabledmom]

For some reason they didn’t have me do the tilt table test but I’m glad they didn’t cuz it terrifies me lol

[ourfamilydoes]

So interesting! I’m kind of wondering if I have it now 🤔 My feet aren’t always freezing and I have a hard time taking a deep breath when standing. I know I have an irregular heartbeat. I keep saying my freezing feet are at least not normal lol. Always have to wear fuzzy socks. Thanks for the insight!

[katekeisner]

Hey girl!
I just found your channel and I am loving all your content! I was diagnosed with pots in 3rd grade, I have had so many different symptoms. Lately I have been having a lot of leg pain especially after sitting or standing for to long. I was in the car for 30 mins and my entire right side leg was aching so bad. Do you ever experience leg pain? If so what do you do to help? I’ve tried compression socks a heating bad but it’s a temporary relief. Thank you!

[nicktheveganchick]

I have POTS too. Very informative video! 👍

[orangefish]

oh, uh. After hearing some of those symptoms, I should probably see my GP.

[THESTARRS]

Was you able to feel the sudden change in heart rate when going from laying down to standing?

[MelodramaMama]

This video makes me wonder if this is what's going on with me. My heart RACES when I stand and I sometimes feels like I'm going to pass out. I also get extremely dizzy when I stand up. Is that a symptom of it? I cant remember if you mentioned that or not. Thanks so much for the information <3