What is Lewy body dementia and how is it treated?

Presented by William Mantyh, MD, a neurologist at the UCSF Memory and Aging Center as part of the Lewy Body Dementia Caregiver Webinar Series supported by the UCSF Memory and Aging Center and the Administration for Community Living.

[annekristineosoffsky]

In December, 2017, my oldest brother was diagnosed with Parkinson's disease. I was diagnosed with Parkinson's in 2004. He was placed on C/L ( generic Sinemet). I have been on this medication since 2007, & told him that as long as I take my medication regularly, my symptoms are well controlled. Unfortunately, we knew it relatively quickly, that Greg's symptoms were more "severe". Hallucinations, sometimes violent, & physical deterioration was swift. It was not until his autopsy that we were given the diagnosis of Lewy Body disease. Greg was the strongest, brightest person I have ever known. It has been 6 years since his death, I am still in shock how swiftly this disease brought down the "Goliath" in our family. God bless every family that this disease traumatizes.

[staceylowe]

Thank you for this video. I work with a pt w/ LBD and have a parent with Parkinson's so learning more about dementia and disease progression as layed out in this series has helped me in my practice and advocacy.

[trudygray]

Thank you for this information. I am currently undergoing tests at the moment, and this information has helped me a lot as to what to has helped a lot as to see what I have coming. Hope fully we can all be prepared in one way or another. Thank you

[darlinspaces]

My Uncle has this since only 69. I asked my Dr if it can be hereditary and she said no. Then she says” if you have Dementia, that’s it”. As if to say there is no help? Sometimes Doctors can be so off putting I don’t understand them.

[allonaread]

So so wonderful Ann. Thank u so much . I have this. I am several years now. Lots t take in !!. It is nice to talk to someone or listen about that thank you so much

[barbarahuttmann]

Seroquel helped my husband greatly, in the last of the 7 years he had Lewy
body dementia. it calmed him and decreased the hallucinations and anger.

[elsiekaminski]

Finland has a very high incidence of dementia.Could that be caused by mold issues in their homes

[apostolicvegan]

This was an excellent talk. Thank you!

[alissagonzales]

My husband was just diagnosed with mild dementia. Yet his mother and father never had it. His father and mother were healthy and mentally sharp til they passed away at 90. As we're his grandparents and uncles and aunts. Who also were in their 90's when they passed on. All of them would go to Vegas to play poker or 21 etc. In fact two weeks before she passed we all went to Vegas. I went shopping she went poker playing. They all loved poker.. What the heck happened to my old man. He's in his late 70's.

[pomegranate]

Is there a good reference list for treatment protocols and the rationale behind the drugs used? In particular I'd like to understand the role of AchE inhibitors vs Antipsychotics in the management of delusions and visual hallucinations as our doctor (I believe wrongly) is insisting on antipsychotics as first line.

[michaelfannon]

Do Medications used to treat anxiety and depression cause Dementia like my parents say?

[havanadaurcy]

Question: My great grandmother had this but also Parkinson's. Can one cause the other?

[boe]

Is Memantine appropriate for Lewy body dementia?

[jodistiles]

How do I find a doctor who understands this disease?

[shelly-]

This sounds a lit like my fellas mum, only she says she never sleeps as she has night terrors as she was pgysicly and, sexualy abused badly as a child. She's falling not eating. Cutting up payment card.constantly repeating the same sentence.

[lifewithjimmy]

Oh come on man!! Don’t even……. This disorder sounds really BAD!! I’m sorry!! Wtf???both my parents had it……I don’t want this!! This sounds like a nightmare!! It’s 😳😵‍💫😟😳🥺😟😵‍💫what a mind bender!!! 🥺