What Are the Symptoms of LUPUS? A Doctor Explains

What is lupus? What are the signs and symptoms of lupus and who is at risk? I explain it all in this video, please take a peek!

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xo Dr. Jen

#lupus

[ladymac]

I am a 57 yr old brown woman with Lupus. Pain started in 2008. It took my Rheumatologist about 6 years to diagnose. (She is the 3rd rheumatologist) Before that, she called it Undifferentiated connective tissue disease. I was in so much pain, it felt like I was walking on rocks bare feet😢 My body felt like I was laying on a bed of nail or pins and needles. I also felt like I was brutally beaten with a bat or crow bar. I can't tell you how many days I cried. My husband felt so helpless. I couldn't get out of bed to go to work as a Correctional Officer. There was a male officer who noticed me crying in my car. He would help me to the time clock and into roll call. It would take me a long time to get to my post. I also have POTS. Before diagnosis, i would just pass out! Thank God I have the right team of doctors. Rheumatologist, Cardiologist, pain management, psychologist, eye doctor, (due to one of my medications can cause blindness). I also do Aqua therapy.

[kathymcmullen]

I am white woman and have SLE and many auto immune system disorders. My system is a wreck. I had the special test 4 times constantly positive. I am 75 yrs and was finally diagnosed 10 years ago after years of searching for answers. Have bout all you mention at different times. None of us alike. Thank you.

[majaharder]

Hi. I’m a danish Family doctor. I just want to mention that you’re really good in explaining yourself - love the Way you do This kind of videos. / Maja

[kimfranklin]

I just wanted to say Thank you for making this video about Lupus. I have Lupus along with other Autoimmune diseases which as you know if you have one you’ve probably got more hiding in there, which is what I learned years ago when I started to feel strange and what I also learned is not to take the word of the first doctor that tells you nothings wrong with you especially if it’s just a GP (not that there’s anything wrong with a GP, we all need a good one)You know your body and if they say nothings wrong go to another one and if they don’t wanna give you the time and dismiss you go to another one there are so many out there that think they know it all and they don’t. Unfortunately, I found out the hard way, and it took me many years being misdiagnosed, I had a seizure and a stroke. Like I said, you know your body don’t take the word of one doctor. You seem like you are an amazing doctor and one that cares about your patients and those who are not your patients. I love your videos, please keep making them. Thank you.

[melissab]

Can you please do a segment on lupus vs fibromyalgia??

[Tootsie]

Thank You Doctor. I was diagnosed with Lupus (SLE) last year. Every day I’m learning new things about this disease and how to live with it.

[sararosales]

I was just diagnosed with lupus and I'm frightened 😢❤thank you for this informative video 🙏 ❤

[haylihunter]

White with lupus and other autoimmune, headaches all the time, stomach issues, muscle bone pain rash on legs i only get pink cheeks very scary the first time when it effects your breathing, Dr blamed it on hypothyroid for years untill i had hand rash and breathing issues and heart pains, and ana test positive hope this helps someone.

[moebanshee]

I tested positive for lupus 30 years ago.. I also have postpolio syndrome.. I'm a mess.. I have accepted it and I don't let it beat me but the only treatment anybody ever offers you is and antidepressants.. oh you have lupus You must be depressed.. That's my patients give up. We go to doctors and instead of giving us a pain medication to help with the horrific swelling and pain and in my case bones that break literally I get told just take a antidepressant or being pain till you die. I can't take antidepressants. Doctors have to stop letting the government tell them how to treat their patients.

[ifixeditmyself]

Thanks Dr. Jen, I know for myself sometimes I have a pain or an aching feeling and assume it's something that I was doing in the gym, or yard, or some other activity. But I don't always go to the doctor to have it checked out. Visiting often is a good way to relieve the mind and better understand the changes taking place in our bodies so we don't have to worry and to get our concerns answered. Thank you!!😊❤

[hementikanaidoo]

Hi Doc. I have lupus and constantly suffering from chronic pain, chest pain, remathoid arthritis, rashes on my hands, reynauds phenomena, brain fog, can't wake up in the morning's and if I force myself to wake up in the morning's I start to shiver and shake all over, I've been in and out of hospitals on numerous occasions and being diagnosed for something else....
Headaches, nausea, dizziness and fainting and blackouts that I can't remember what happened... And back in the hospital diagnosed from the doctor that I'm very anemic, blood count was very low and diagnosed with anemia for years... I've had both of my lungs filled with fluid on two occasions and hospitalized twice, one of the doctor took an interest on my condition because I was coming there on numerous occasions and in bad condition where I was in ICU.. Afterwards I was diagnosed with lupus... Doc. I wish I could have one day where I wake up like normal people do and without pain....
But when you have lupus nothing is normal, isn't it...
It's like you're a soldier at war and you got nothing to protect yourself from, no shield, ammunition, nothing, you got nothing but you have to survive through it, as a lupus patient you never know what gonna happen next to you. So you have to do what it takes to survive and repeat the same thing the next day....
I think that if didn't have a strong support system from my family and my wonderful husband I wouldn't be able to say my story of lupus... 😘🦋🦋

[rettereacts]

I will like to see you have a segment on Lupus vs RA

[NARCMECENTRAL]

Currently going through almost all the symptoms your discussing. Thank you for these support videos as I know go to a Rheumatoid doc this month. It runs in my family and they thought I had it at 4. 34 now and its ravaging my kidneys. Stage 2 CKD here now and all I can tell my daughter whose 11 whose seen me just get done with endometriosis diagnosis with lapo surgery is that mommy is ok. How do I tell her when I am diagnosed. The endo kept me away from her for years. This is torture as I can't work, can't travel, and will need more surgeries...smh God is good. At least we might finally be close to answers...No other condition I've just learned has ever discribed my blood clotting during "only" pregnancy. This is the only condition that even touches EVERYTHING. Brain fog is NO JOKE. Thank you for this luv. Be blessed

[CremeBrulee]

Thank u for making this video and getting the word out about lupus

[ritalewis]

I’m so very grateful for you speaking on Lupus I was diagnosed with Lupus Sle in 2019 very scary at the time I’m on this infusion call Benlysta I get it once a month thanks again for speaking on Lupus a disease I feel often gets Overlooked 5-29-2023 I’m from Memphis Tennessee

[ChrisJackson-xoic]

My mother a RN /director of nursing passed away with this very disease in 1995..

[cordellhowellhuie]

Thanks Dr. Jen....I'm learning from these videos. Can you do a video on what to do or not do, what to eat or not eat if you have lupus? I would really appreciate it. My daughter in law was recently diagnosed with lupus so we currently going through a phase and it is very traumatic

[a.h.s]

I'm suffering from sle lupus it is terrible and awful to live with it's already attacked organs causing me to lose some and it's targeting other organs and the skin and blood, the symptoms are awful and terrible and very uncomfortable it's very unpredictable. I take so many medications every month it's crazy when i get almost two grocery bags full of medications i have to take along with lung meds and an nebulizer treatment machine and two different prednisones i have to take for the lung pain and short winded discomfort and low oxygen level I'm getting back on an cpap i know i will end up on oxygen one of these days. I have an doctor for every organ of my body including my skin and blood since it is effecting that too.

[roddorsett]

Ummm 🤔 Good 👍 To Know! Thanks for the ❤️‍🩹 Info Dr 👩🏻‍🔬 …

[ttaylor]

I would just like to say I work in medical. You can still get checked out by your doctor and that doesn't necessarily mean anything because what I've seen is a complete mismanagement, negligence, and a large collapse of our medical infrastructure in the United States in the last 4 years. I've seen a lot of really good people DIE because they were misdiagnosed, not listened to, the appropriate testing was not done because of insurance companies calling the shots, and doctors just being overworked and tired. I think it's really sad. I was diagnosed with Lupus SLE when I was 19. Probably looking at irreparable damage to some of my vital organs at this point because NOBODY took me seriously for a VERY long time. I now have SIX masses growing that NONE of which have been biopsied. Do you know ANY doctors wives that would get a mass in one of their breasts or their brain and then just be told "Well, we THINK it's ok" 🤷🏼 and not have ANY extra tests done and then tell the patient to just deal with it? NO. You wouldn't see that with somebody who has prestige or money, because what we are starting to see with the collapse of infrastructure in medical as well as many other parts in the United States is that it's becoming those that have the money see the providers that WILL actually DO something about it outside of what the insurance company is allowing or not allowing, and those that don't, don't get that same treatment often. I think it's a crime and I think it's really sad.