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Life with Phocomelia. #SpheraNetwork #Greece
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🦿 How do people born with malformations relate to their bodies?
In addition to motor challenges and the effects of various medical interventions they must undergo, being born with malformations often brings difficulties in how they relate to their bodies and others.
Popaganda entered Sotiris’s life, a 30-year-old man born with Phocomelia, a rare congenital condition often characterised by severe malformations of the limbs. He uses a prosthetic leg and has malformations in his hands. Throughout his life, Sotiris has had to confront not only uncomfortable situations but also bullying, discrimination, and accessibility barriers.
In addition to motor challenges and the effects of various medical interventions they must undergo, being born with malformations often brings difficulties in how they relate to their bodies and others.
Popaganda entered Sotiris’s life, a 30-year-old man born with Phocomelia, a rare congenital condition often characterised by severe malformations of the limbs. He uses a prosthetic leg and has malformations in his hands. Throughout his life, Sotiris has had to confront not only uncomfortable situations but also bullying, discrimination, and accessibility barriers.