How I made a partial recovery after becoming paralyzed #Disability #Disabled #Accessibility

[AliciaGuitar]

Thank you for adding that, "it was also just luck" part! This is SO true, and its sad i see other disabled ppl shaming other disabled ppl for not recovering as well assuming they didnt "do the work" or did something wrong. Some ppl just have terrible luck no matter how hard they try. I lost count of my rounds (at least 12 sessions) of PT and therapies. I still cant walk, but my left arm is still improving very slowly. Its been 8 years.

[ally]

I'm always in awe of how beautiful your skin is. It's luminous !

[victoriacamaillepoole]

Thank you for sharing your story, I can’t imagine what you’ve had to endure. ❤ Glad you were able to recover partially with luck and treatment! I subbed bc I love that you speak about accessibility. My aunt was paralyzed from the neck down at 27 from MS and never regained use of her legs. I watched the struggle since I was younger, even the small things. I love that you speak for disability access, it’s so important. We have come a long way but have much more to improve on. ❤

[Jungshook]

As an occupational therapist, I am so glad that you were able to receive OT and PT services!

[richardross]

I was a quadraplegic in the Army almost 50 years ago. I partially recovered within 5 months, enough to walk and use my arms. Within 5 years I was about 3/4 recovered. Since then, I have slowly regained more. As I healed, there were new pains from unused nerves as they healed. Be optimistic. Good Luck, Rick

[Liz_]

You went through so much!!! You are helping others so much by talking about your journeys ❤️

[kay.makenzieee]

your my literal hero, keep going, ur amazing !! ❤

[howdy]

Omg I love that color of blush!! Had a lipstick that exact shade as a child that was my FAVORITE.

[ainnochaim]

Did the doctor who accused you of lying get held accountable in any way? Was he told about what you really had? He's clearly a danger and at the very least, needs to be retrained.

[prosebbros]

Sometimes, I wonder how many women are sent home from the ER because they are seen as "exaggerating". When I was 15, my mom got sent home from the ER after having a stroke. If it wasn't for me yelling at the ER doctor that she wasn't acting right, she likely would have gotten worse or died. She had to learn how to write again, relearn certain vocabulary and how to use her left side. It was a lot, but we managed. It just makes me wonder how many lives could have been affected because swift dismissals.

[jennchum]

That must have been terrifying. In the 16 hours that it was happening and you didn’t know how it would turn out mush have been so incredibly scary. I’m so sorry you had to go through that!

[moodzunlimited]

Wow, what a roller-coaster you have been through.
But im sure you have been told a million times, you are amazing and beautiful as well..❤
Love and huge huggs from Australia

[RobertMesa-fuoy]

I have been donating plasma for four months now I had no idea

[thehollyannrose]

I hate so much how ERs doubt people that are sick or injured.

[ReepicheepSlayton]

Your makeup always looks so natural and flattering! You have great style

[utsxslv]

I love that you caption your videos. But just so you know these captions were hidden under the CeCe lmitation thing at the bottom of YouTube shorts

[leonarddaneman]

I had a gradual onset of peripheral neuropathy until I could barely walk. I kept going to the doctor but they refused to do tests or take me seriously. I was even turned away from the ER, but the next day found a neurologist who put me into intensive care and on Gamma Globulin, a similar treatment to plasmapheresis, but your treatment was safer. The prescription of steroids is counter-indicated by the Merck Manual for Guillain-Barre' Syndrome, which is what I assume you had. I refused to take the steroids and glad I did because it can make the condition WORSE!
It took over seventeen years to fully recover. I went from an athlete to and invalid and my doctor of 18 years was so upset he messed up he quit being a doctor.

[AndreaCrisp]

Thank you for sharing your experience. I really appreciate your sharing and advocacy.

I am a science/health nerd, because I have Multiple Sclerosis, so I am always interested to hear about different treatments and experiences.

I find it interesting that the plasmapheresis worked when steroids didn't. I wasn't familiar with it, but looks like they do sometimes use it for Multiple Sclerosis and many other neurological issues. Was your original issue/cause due to an infection?

Although quite different to your situation, I now have permanent nerve damage to my dominant hand from lesions at C2. Like you, I might be having a different life experience if doctors had done things differently when I originally had issues. However, insurance says to not do MRIs of the spine when someone presents with MS like symptoms, because it's rare to have lesions in the spinal chord. When in reality 80% of MS patients have them. It's that they don't want to pay for it. So I wasn't diagnosed for years because no one looked at my spine until the damage was done and too far gone.

I'm lucky to have my eye sight back (optic neuritis) and one good hand. I hate US insurance and medicine. Only good if you are a rich white man. Everyone else is dismissed and not believed. So shameful.

[HeyitsmeKatie]

I've had to have many plasmapheresis treatments over the years just for something different than you. I'm glad it helped you

[frauimsee]

your skin is so so nice holy moly, what's your routine?