My Body Attacked My Brain | Lupus

We wanted to share this young woman's story with her experience dealing with Lupus and how she has been able to persevere through such mental adversity to stay strong and positive. Lupus, an autoimmune disorder, can attack any part of the body - but in her experience it attacks her brain, which makes the story submitter have all sorts of mind twisting false realities. From thinking she was in the presence of demons, thinking she has passed away, to having all of her senses cross and mismatch, she has every reason to feel defeated in life but she doesn't let that happen. She acknowledges that being happy is hard when you're suffering, but she knows that she is stronger because of this, and knows that her happiness is possible. We hope this video is able to encourage anyone going through something that tests their strength to be happy and continue pushing forward, knowing that no matter the situation, happiness is possible.

[luisapaternina]

It is so hard specially when the Doctors take so long to figured it out, and your family thinks you are making it up :(

[Williamb]

me as well…my symptoms were: persistent reoccurring rashes, extreme fatigue, brain fog, sensitivity to light, swollen lymph nodes, and traveling symptoms like a few days of a sore throat, then a cold, then muscle aches and pains, then constipation etc. What saved me regular non over strenuous exercise, diet(gluten free, no sugar or processed foods), pure oxygen canisters that climbers use (about 10 deep breaths a day) AND 400 mg plaquenil (hydroxychloroquine) per day (hydroxychloroquine), 8-10 hours of sleep a day, and avoid/stay away from any work or relationships that are stressful me
The recovery was slow over a 6 month period or so…and now as long as I keep my regime intact, I am in a healthy equilibrium…if I deviate then flare ups begin

[OnlyJalenPhd]

Thank you! I’ve looked for others with NPSLE, and this is the first one! Everything you’ve said, is dead on! My mental status is horrible. I hear my name being called, I can’t think of words, my short term memory is shot! It’s a terrifying life! Thank you for sharing your story. I truly needed to hear it, so I don’t feel so alone.

[Oracle]

My sle is attacking my brain/spinal cord as well, not nearly this bad, but I stutter, have memory loss, and brain zaps. It's a real thing called CNS lupus, when it attacks the central nervous system. Thank you for bringing awareness to this very real and very under researched organ involvement that so many of us have to a degree

[katherineknapp]

Stay strong with your Mental health and DEFINITELY your Faith!

[rsnmarkmark]

I can't stop sobbing and crying, my fiance is in the hospital RIGHT NOW and I think her lupus is attacking her brain. She's starting being mean to me and she's claiming I've said things to her and I'm just so worried and scared and she's hurting me (emotionally) but I know it's not her

[donnaclark]

Thank you. I just found out I have Lupus and know God is with me. Your video was very helpful

[luckyblackcat]

"This is just a dream and soon I will awake."

[loritaylor]

House MD joke. “It’s never lupus.” Lupus, in all seriousness, is kind of serious. I feel bad for her.

[jlf]

Thank you so much for sharing. I am having the worse flare up ever! I got together with my family for this 4th of July weekend and felt like EVERYONE OF THEM were looking down at me. I mean I wasn't at the bottom of the totem pole, I was below it! I blocked my husband and all 3 of my kids. It's unbelievable! Thank Our Lord that we have him! He led me to this video and now I understand. Now I'm just praying he takes these aches, constipation and bloat away. 😪

[BeautifulCreature-]

I’m still paying for judgment of the fantastical thing I said when my brain was on fire. If they don’t educate themselves they will never understand. Many judges with no education.

[fini]

I‘ ve got SLE diagnosed 2016. Now we knew it was breaking out in my 20s - missdiagnosed for over 20 Years! And i‘ve wrote on the Back of my healthfolder: „FU Dr. House - it‘s Lupus“

[mariejune]

My daughter had all of those symptoms. She taking an IV medication monthly. and back in college. God delivered her!! I give him all the glory!!!

[ashmarine]

Narrator: "I think I'm going crazy.."
The school nurse: *"Have an ice pack"*

[janethawthorne]

Thanks for that. I'm living with the disease and having headaches when I came across this. Sometimes I feel I'm getting crazy, even my eyes feel they are coming out my head

[lyc.]

My mom has lupus too and she takes medicine for that, and I'm scared of one-day she'll not be ll with me anymore. Lupus is incurable.

[baileysubliminals]

"I self diagnosed myself with every minor sympton"
IF THAT AIN'T ME!!

[laylaesdesu]

There is a movie about this or similar illness and it is called literally ''brain on fire'' because the girl which experienced it called that feeling like that

[armidacudney]

I have Lupus. And my mom had Lupus. And my mom cousin have Lupus. I don't have it as bad a this young woman. I do take medicine for it too. It is also hereditary. If anyone in you family have it. Good chances someone in your family may get it too. But doctor can't check your child until they show signs of it. I'm afraid my daughter my have Lupus too. I wish this young lady well.

[ladeek]

Thank you for being so generous and sharing your story. I am sorry this is your struggle. It sounds as though you have a good support system and for that I’m happy.
This is a very real and frightening experience. I’m a medically retired psychotherapist due to something??? Neuro inflammatory autoimmune, still working on it. Eyes, mobility, brain…..etc…. I’ve got the whole party going on. So I understand the struggles you describe. Sending you good vibes and peace..