A Day in my Life with POTS | Dysautonomia Awareness

In light of dysautonomia awareness month (October), I vlogged a day in my life living with POTS (and fibromyalgia). I walk you through my morning routine and share my heart rate readings while I shower. I might add here for anyone reading my resting heart rate is 55bpm, so to reach 131bpm in the shower is quite an extreme jump. POTS diagnostic criteria involve a jump of at least 30bpm upon standing. My heart rate has been as high as 140bpm in the shower, and 167bpm from an adrenaline dump. Usually, from just standing, my heart rate will jump to over 100bpm, but will calm down when I'm walking, or when I lay back down. It's important to keep my feet elevated.

I also talk about my recent experience with a person accusing me of "faking it". I explain how that is not possible, and how anyone who suggests such things to a chronically ill person is clearly ignorant and not worth your time. I might add that it doesn't matter who this person is, even if they're family. Not worth your time.

I run you through my nighttime routine and medication and talk about how the beta blockers are helpful but also the side effects involved.

If you would like to learn more about my journey, please refer to my "Chronic Illness" playlist on my channel.
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#dysautonomia #POTS