SPG50

Toronto family of child with rare SPG50 disease raises $3 million for gene therapy

Lincoln’s Light - Rare Disease - SPG50

Family races against time to raise $3m to treat son’s ultra-rare disease

#EsperanzaparaAlberto 🖐️✊, el pequeño con SPG50.

GTACC WIL 2023 SPG50

Season 3 Episode 1: Against All Odds: Finding a Treatment for SPG50

Boy with ultra-rare disease begins groundbreaking gene therapy

Physical Activities Training in SPG50 (For All AP4 Patients)

Alberto, 1 de los 3 casos con SPG50 españoles.

SPG50 challenge

Southport parents fight to save their son and others from rare genetic disorder

Audio-Technica AT-SPG50 Compact Speaker Short Sound Test

JUNTOS aceleramos la esperanza.

Boy with rare disease gets skin transplant

Naomi's Story

Family hopeful about therapy after baby diagnosed with rare disease

ResumenFestival RenHacer 2023

Colorado family pushes for more funding, awareness around rare neurological disorder

Season 2, Episode 8: Jack’s Corner Foundation, SPG 50: Devin and Mike Dwyer

Southport couple searches for cure for son's rare genetic disorder

Entrevista a la neuropediatra Itxaso Martí, responsable del ensayo para SPG50.

EL PARTIDO PARA RENHACER / THE MATCH FOR A NEW LIFE

How Do We Treat the Untreatable? SickKids VS Rare Disease

El sueño de Alejandro SPG50